1. < MAC & Bronchiectasis

Frustrated

Posted by barbjh @barbjh, Jul 30, 2018

I saw my doctor at Mayo the middle of June for a yearly follow up for my MAC infection. We are not treating it at this time, just monitoring it. He did a chest x-ray and pulmonary function test that were all stable. We discussed doing a CT scan but because they could not sneak me in he put an order in for me to have it done close to home. I had it done the following week and they pushed the images to the Mayo. I still have not received the results. Have called several times. I know he is busy and I do adore him but am frustrated that I have not heard back. They said he was backed up for months. I am sure if there was something serious that my hospital would have got in touch but I really wanted to see how it compares to the previous CT scan done at the Mayo. This stuff is so overwhelming sometimes and clear answers seem to help. Just venting!!

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Mentor
Terri Martin, Volunteer Mentor | @windwalker | Oct 29, 2018
In reply to @beverly1945 "I agree I’m newly diagnosed also no antibiotics going back in Nov" + (show)
@beverly1945

I agree I’m newly diagnosed also no antibiotics going back in Nov

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@beverly1945 Hey Beverly! How are you feeling these days? What are you up to?

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Mentor
Terri Martin, Volunteer Mentor | @windwalker | Oct 29, 2018
In reply to @tdrell "@jaejack and others....if you can afford it....and if help is available for when you are on..." + (show)
@tdrell

@jaejack and others....if you can afford it....and if help is available for when you are on the Meds ( or actually at any time) get the help. You can always cancel. On August 25th I was walking into local grocery and managed to fall headfirst onto entire body when tip of shoe caught on a lip of sidewalk (uneven).
Replaced hips fine....did not hit head but face got road rash as they called it....but CAT scans revealed fractured ribs most of left side....2 on right. I opted to go home. Husband tried to be helpful but ...... a dear chum who was a nurse insisted on coming and helping. What a difference!!! So I really think getting proper assistance at critical times is invaluable. Different scenarios with taking the Meds but having “help” is so comforting when we are under stress.tdrell

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@tdrell Hi Terri. I missed this post about your fall somehow. Maybe I was in evacuation mode or something. Are you all better? I hope so. As for hiring help, I totally agree. I just had a housekeeper come in and do a deep cleaning on my house and organize my closets. There is NO way I could have done all of that. I feel like I am functioning better with things in order.

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