1. < MAC & Bronchiectasis

Bronchiectasis: New Diagnosis

Posted by navylady @navylady, Jul 26, 2018

New to your group. Non-smoker. Pneumonia x6 in 12 years, double pneumonia twice. Was diagnosed with chronic bronchitis and COPD for past 15 years, now pulmonologist based on x-rays and MRI has diagnosed no COPD, yes bronchiectasis. Take advair 250/50 twice a day. Past ten days I am increasingly gurgling, wheezing, some chest pain. I have recently moved to Florida which I like but am having long wait times to get into see a family care NP who can hopefully refer me to a pulmonologist. I walk 20-30 minutes a day. Any ideas how to manage this now. Am worried about getting pneumonia again. I went to one walk-in clinic at a reputable hospital. They literally did nothing except take x-rays. Didn't even talk to me. Just billed $2000+ for x-rays. Do I try another walk-in clinic. I feel very alone right now with this chronic medical problem.

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

Mentor
Terri Martin, Volunteer Mentor | @windwalker | Mar 31, 2019
In reply to @danielad "@windwalker -- Hi Terri, at which point and why would one get a bronchoscopy to get..." + (show)
@danielad

@windwalker -- Hi Terri, at which point and why would one get a bronchoscopy to get the sputum out? Is it to get a sample or is it used to get what is stagnating and obstructing breathing? I have been asked to provide a sputum "sample", but I was never able to do it and my pulmonologist has not suggested doing a bronchoscopy. Thanks -- Dee

Jump to this post

@danielad You may want to ask your pulmonologist, not your GP, about whether a bronchioscope would be a better option for getting a good sample for mac or pseudomonas testing.

REPLY
1 reply
Dee | @danielad | Mar 31, 2019
In reply to @windwalker "@danielad You may want to ask your pulmonologist, not your GP, about whether a bronchioscope would..." + (show)
@windwalker

@danielad You may want to ask your pulmonologist, not your GP, about whether a bronchioscope would be a better option for getting a good sample for mac or pseudomonas testing.

Jump to this post

@windwalker -- Thanks Terri; I will do that. By the way, how often would you need a sputum sample? Only once, or more? Thanks.
--Dee

REPLY
1 reply
franthony | @franthony | Mar 31, 2019
In reply to @windwalker "@franthony If one cannot get sputem to come up from deep down, then a bronchoscopy may..." + (show)
@windwalker

@franthony If one cannot get sputem to come up from deep down, then a bronchoscopy may be needed.

Jump to this post

Yeah, we've discussed that as an option when I hit the 12 month mark.

REPLY
pfists | @pfists | Mar 31, 2019
In reply to @windwalker "@pfist No, Shari, it will be a conference for Mayo Mentors and Moderators. I was just..." + (show)
@windwalker

@pfist No, Shari, it will be a conference for Mayo Mentors and Moderators. I was just putting it out there in case you or any other members wanted to meet up.

Jump to this post

@windwalker888
Terri just checking in case it was something open on MAC. Thanks for all you do for this board...I really appreciate all the time and effort you put in here!!!
Let me know when we get closer to that date and Hopfully it works out.
Shari

REPLY
1 reply
heathert | @heathert | Mar 31, 2019
In reply to @tdrell "@america rita...a side note....great you felt well enough for shopping...I read years ago that a study..." + (show)
@tdrell

@america rita...a side note....great you felt well enough for shopping...I read years ago that a study showed that for some people...women in particular ...going shopping released endorphins and resulted in an elevation of mood!! “Retail Therapy” terri aka tdrell

Jump to this post

Yay shopping, makes you feel great.

REPLY
tdrell | @tdrell | Mar 31, 2019
In reply to @windwalker "@tdrell Wisconsin. That's right, I remember that now. So, how have you been doing??" + (show)
@windwalker

@tdrell Wisconsin. That's right, I remember that now. So, how have you been doing??

Jump to this post

@windwalkerTerri...good report from NJH in January...then 5 days after return....bronchitis just like last year...so good bye to February...started weekly allergy shots ( dust and mold) last July...so maybe that’s why I had only one round of bronchitis this year vs last year having 3!thanks for asking😀@tdrell terri

REPLY
2 replies
tdrell | @tdrell | Mar 31, 2019

Everyone....National Jewish Health on Sept 21st 2019 is having annual NTM lecture for Patients and Families in Denver. It probably will be videoed so in future, non attendees can see on line. @tdrell

REPLY
1 reply
lnduh66 | @lnduh66 | Apr 1, 2019

Newly diagnosed and waiting for results from bronchoscopy 6 weeks ago. On average, how long does it take for results? Not coughing much but becoming short of breath more often. Becoming more aware of my surroundings and staying away from sick people, then my husband comes down with a terrible cold. What a challenge. Thanks!

REPLY
2 replies
janovr | @janovr | Apr 1, 2019
In reply to @lnduh66 "Newly diagnosed and waiting for results from bronchoscopy 6 weeks ago. On average, how long does..." + (show)
@lnduh66

Newly diagnosed and waiting for results from bronchoscopy 6 weeks ago. On average, how long does it take for results? Not coughing much but becoming short of breath more often. Becoming more aware of my surroundings and staying away from sick people, then my husband comes down with a terrible cold. What a challenge. Thanks!

Jump to this post

@induh66

REPLY
1 reply
janovr | @janovr | Apr 1, 2019
In reply to @janovr "@induh66" + (show)
@janovr

@induh66

Jump to this post

Sorry you are here, but welcome! It takes at least 6 weeks to grow. Wash your hands often and keep them away from face. Great advice here you will not here from your dr..... which BTW, I pray is a good one. My first was a medicine happy
pusher. 😀 Jan in Fl

REPLY
View MoreView Less
Please sign in or register to post a reply.