1. < MAC & Bronchiectasis

Bronchiectasis: New Diagnosis

Posted by navylady @navylady, Jul 26, 2018

New to your group. Non-smoker. Pneumonia x6 in 12 years, double pneumonia twice. Was diagnosed with chronic bronchitis and COPD for past 15 years, now pulmonologist based on x-rays and MRI has diagnosed no COPD, yes bronchiectasis. Take advair 250/50 twice a day. Past ten days I am increasingly gurgling, wheezing, some chest pain. I have recently moved to Florida which I like but am having long wait times to get into see a family care NP who can hopefully refer me to a pulmonologist. I walk 20-30 minutes a day. Any ideas how to manage this now. Am worried about getting pneumonia again. I went to one walk-in clinic at a reputable hospital. They literally did nothing except take x-rays. Didn't even talk to me. Just billed $2000+ for x-rays. Do I try another walk-in clinic. I feel very alone right now with this chronic medical problem.

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Brenda R. | @brigby | Mar 31, 2019

@danielad thank you, please continue to update us on your progress!

REPLY
1 reply
pfists | @pfists | Mar 31, 2019
In reply to @windwalker "@pfist Hi Shari. Do you live near the Mayo clinic?" + (show)
@windwalker

@pfist Hi Shari. Do you live near the Mayo clinic?

Jump to this post

@windwalker888
Mayo is about hour and half from me. I went there for a second opinion a couple years ago when I was still positive for Myco bacteria Abcessus.
My Pulminologist here says he has a couple of doctors he treats on the shot nucala for eosinophil asthma and its working good. I'm giving it a go for a couple of months now. I was good for 2 months then I quit it and since then have been having asthma attackall the time. So going back on it again tomorrow.
Shari

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1 reply
america | @america | Mar 31, 2019
In reply to @merpreb "@kpost2- Good morning. I'm with you on Albuterol. I hate the side effects. I feel like..." + (show)
@merpreb

@kpost2- Good morning. I'm with you on Albuterol. I hate the side effects. I feel like in one of those old fashion shaking machine. But they work and their effects become less over time. I have a tendency to stop meds that I don't like because I want to feel "normal". But that's really being short sighted for me. I have had to be patient and "put up with things" for a short while in order to feel better in the long run. There is probably a barrier that you could put up for your eyes. or close them and rest. It only lasts a short time and it helps over time. I do hope that you will reconsider. It helped prevent a bronchitis into developing into a full blown pneumonia for me and let me stay at home.

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Good morning! Yes I know the albuterol makes my heart race too but my doctor at Mayo told me to use it before my Tobramycin and it’s helping. It does open up the airways and help me breathe better. It may not be for everyone but it’s a good thing to keep until you know you really can’t. I was ready to give up meds as soon I felt some side effects but recently I listened to a special person in our group and I can say... I’m doing much better! Yesterday I went shopping for 4 long hours! I have not done that in more than a year. I am starting to feel like a normal person again. I hope you feel better! Hugs and prayers! Rita

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3 replies
tdrell | @tdrell | Mar 31, 2019
In reply to @windwalker "@tdrell You live near the Mayo there?" + (show)
@windwalker

@tdrell You live near the Mayo there?

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@windwalker terri...I live in Wisconsin north of Milwaukee...terri at tdrell

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1 reply
tdrell | @tdrell | Mar 31, 2019
In reply to @america "Good morning! Yes I know the albuterol makes my heart race too but my doctor at..." + (show)
@america

Good morning! Yes I know the albuterol makes my heart race too but my doctor at Mayo told me to use it before my Tobramycin and it’s helping. It does open up the airways and help me breathe better. It may not be for everyone but it’s a good thing to keep until you know you really can’t. I was ready to give up meds as soon I felt some side effects but recently I listened to a special person in our group and I can say... I’m doing much better! Yesterday I went shopping for 4 long hours! I have not done that in more than a year. I am starting to feel like a normal person again. I hope you feel better! Hugs and prayers! Rita

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@america rita...a side note....great you felt well enough for shopping...I read years ago that a study showed that for some people...women in particular ...going shopping released endorphins and resulted in an elevation of mood!! “Retail Therapy” terri aka tdrell

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2 replies
Mentor
Terri Martin, Volunteer Mentor | @windwalker | Mar 31, 2019
In reply to @america "Good morning! Yes I know the albuterol makes my heart race too but my doctor at..." + (show)
@america

Good morning! Yes I know the albuterol makes my heart race too but my doctor at Mayo told me to use it before my Tobramycin and it’s helping. It does open up the airways and help me breathe better. It may not be for everyone but it’s a good thing to keep until you know you really can’t. I was ready to give up meds as soon I felt some side effects but recently I listened to a special person in our group and I can say... I’m doing much better! Yesterday I went shopping for 4 long hours! I have not done that in more than a year. I am starting to feel like a normal person again. I hope you feel better! Hugs and prayers! Rita

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@america Hi Rita! So happy to read that you are carrying on as your true self. Rock on!

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Mentor
Terri Martin, Volunteer Mentor | @windwalker | Mar 31, 2019
In reply to @pfists "@windwalker888 Mayo is about hour and half from me. I went there for a second opinion..." + (show)
@pfists

@windwalker888
Mayo is about hour and half from me. I went there for a second opinion a couple years ago when I was still positive for Myco bacteria Abcessus.
My Pulminologist here says he has a couple of doctors he treats on the shot nucala for eosinophil asthma and its working good. I'm giving it a go for a couple of months now. I was good for 2 months then I quit it and since then have been having asthma attackall the time. So going back on it again tomorrow.
Shari

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@pfist I am glad that you have shots to take for relief and that they work. I was asking if you lived near the Mayo because I will be there for a conference in October. Was hoping to meet you.

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1 reply
Merry, Alumni Mentor | @merpreb | Mar 31, 2019
In reply to @tdrell "@america rita...a side note....great you felt well enough for shopping...I read years ago that a study..." + (show)
@tdrell

@america rita...a side note....great you felt well enough for shopping...I read years ago that a study showed that for some people...women in particular ...going shopping released endorphins and resulted in an elevation of mood!! “Retail Therapy” terri aka tdrell

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@@tdrell- I'm happy a lot! lol

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Mentor
Terri Martin, Volunteer Mentor | @windwalker | Mar 31, 2019
In reply to @tdrell "@windwalker terri...I live in Wisconsin north of Milwaukee...terri at tdrell" + (show)
@tdrell

@windwalker terri...I live in Wisconsin north of Milwaukee...terri at tdrell

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@tdrell Wisconsin. That's right, I remember that now. So, how have you been doing??

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1 reply
Mentor
Terri Martin, Volunteer Mentor | @windwalker | Mar 31, 2019
In reply to @merpreb "@windwalker- Good morning! I had no idea that there was an Albuterol minus the shaky side..." + (show)
@merpreb

@windwalker- Good morning! I had no idea that there was an Albuterol minus the shaky side effects! I'll check into that. Do you know if the inhalers have that too?

Jump to this post

@merpreb I am not sure about that. You can ask your pharmacist; they are a good source for that kind of info.

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