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Pre -Transplant Diet and Exercise Ideas

Transplants | Last Active: Dec 6, 2021 | Replies (59)

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@teresatopeka

I have had two liver transplants at Mayo Rochester. I am also a Physical Therapist with a specialty certification in Aquatic Physical Therapy. I have found from professional and work experience, that gentle aquatic aerobic exercise in therapy pools (warmer than lap pools) is very comfortable for patients and there are very few health risks. Something to consider before seeking this out is if you have an open wounds, ostomy sites or issues with fecal/urinary incontinence. Don’t worry about not being able to get into and out off the pool because most Therapy pools have a lift or a walk in/out ramp to make it easier. Often times for patients with extreme muscle wasting, this is a great way to ease back into exercise without stressing the joints too much and is often very relaxing. Plus, I may be biased here, Aquatic PTs are super friendly and fun! The goal with this is to refer you to a community based exercise program. Many hospitals have this integrated into their Rehabilitarion program in some way, shape or form.

I could not swim after either transplant because I had a rather large wound to heal, but what I did in the hospital was request a PT consult and started walking right away. It comfortable at the first, but the more you walk the better you will feel. I learned that the hard way after my first transplant where I refused to get out of bed and sat and pushed my PCA button whenever I had increased pain.The second time around I was walking a mile post op day 1 and had the PT bring in a little bedside bike pedal to use whenever I was sitting up and watching tv or reading. And depending on your platelets post op, you can begin gentle upper extremity stretching in a variety of positions which helps with healing, swelling, and mobility. I always tried to adhere to what is common referred to as “Sternal precautions.” This is a basic set of guidelines given to patients who have had open heart surgery but came somewhat apply to lost liver transplant patient with some modifications. Briefly, they are:

1. Protect your sternum. Hug a pillow to your chest or cross your arms over your chest when you laugh, sneeze, or cough.

2. Be careful when you get into or out of a chair or bed. Hug a pillow or cross your arms when you stand or sit. Do not twist as you move. Use only your legs to sit and stand. You may need to use a raised toilet seat if you have trouble standing up without using your arms. Your healthcare provider may teach you to use your elbow for support as you move from lying to sitting.

3. Ask when you may take a bath or shower. You may need to use a bath chair if you have trouble getting into or out of the tub. Do not use a grab bar. Depending on where you are transplanted at, they may have different protocols for when you can shower after surgery.

4.Do not lift or carry anything heavier than 5 pounds. For example, a gallon of milk weighs 8 lbs.

5. Try to use both arms and hands for any reaching or grabbing of objects around you. Do not let anyone pull your arms to help you move or dress.

6. Do not push or pull anything. Examples include a car door or a vacuum cleaner.

7. Do not drive while you are healing. Your surgeon will tell you when it is safe for you to start driving again.

Depending on how you heal, you age and previous strength and flexibility prior to transplant, the PT can modify these to fit your particular needs.

After two liver transplants I have learned that physical fitness and diet are keys to living a long healthy life after transplant. Whenever I don’t want to go swim my 2 miles in the pool or eat my greens, I always remember that I am not just doing this for me, but for the person and the family who gave a part of their life so that I might live a little long!

Be well,

Teresa H.

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Replies to "I have had two liver transplants at Mayo Rochester. I am also a Physical Therapist with..."

@teresatopeka great advice, as always. 😉

@teresatopeka Thanks for speaking from your personal experience - that is always the best teacher. Teresa

@teresatopeka, This is going to be helpful advice! Thank you for sharing. I had wonderful experience with OT and PT at Mayo prior to my transplant, so I definitely agree with your assessment of Physical Therapists:-)

I imagine that many patients do not have a nearby fitness facility with a pool for aquatic exercise. Or there are some, like myself, who lose their ability to continue doing any usual fitness activities like walking (I could barely get out of bed and walking across the room left me breathless - And I was a walker and a hiker).
Do you have any suggestions for physical activity when nausea, fatigue, and the physical limits of our advancing make it feel nearly impossible?

My cousin sent me a little pedal bike after my strokes, because I was using them in rehab and liked how I felt afterwords. They use different muscles than walking, now if there was something small for walking.

I did not have problems walking after my transplant, just after my strokes. I use a walker now, because my balance is not good. Good enough that I do not qualify for Medicare to approve of me to take a balance class. I walk outside, using my walker, with others around. I will walk inside at home without my walker.

Anyone who needs the exercise and cannot ride a bike, the little pedal bike is great, and not expensive.

mlmcg

@teresatopeka
What super advice...thanks for sharing.

@mlmcg I appreciate you mentioning the small pedal bike. Another advantage is that you can put it on a table top and use it to exercise your arms. Great for strengthening the arms (my mom used it that way in rehab).

Teresa

Yes, you can! I used it in rehab, but at home I don't have a table big enough to use it, so I just knit.

mlmcg

@mlmcg, I love to knit, too. Before my transplant I became so swollen and fatigues, that I could only knit one row on a scarf in basket stitch I was making. After my transplant, when my strength returned, I finished it in almost no time. Right now I'm trying to remember what I did with that shawl!