Hi @carleenburch please note that I removed your email address. We recommend that you use private message to share personal contact information to protect yourself from getting unwanted spam.
Hi @carleenburch please note that I removed your email address. We recommend that you use private message to share personal contact information to protect yourself from getting unwanted spam.
Glad you figured out how to private message, @carleenburch, and that you offered extra support to @mollybradley3. I'd also like to add that by sharing here on the public forum about ovarian clear cell carcinoma, we can all help many more people. OCCC is rare, so the pool of people to share with is small. I'm thrilled that you, Molly, @odette@kenwood1@janice1106 have all connected here.
I am DX with clear cell stage 1c, grade 2. Had total hysterectomy. Had my 2nd chemo 2 days ago. Only side effects i have is a bit of numbness on my finger tips and toes. Doing yoga and walking for 40 min every day seems to help. Hope you get excellent care from your medical team.
Glad you figured out how to private message, @carleenburch, and that you offered extra support to @mollybradley3. I'd also like to add that by sharing here on the public forum about ovarian clear cell carcinoma, we can all help many more people. OCCC is rare, so the pool of people to share with is small. I'm thrilled that you, Molly, @odette@kenwood1@janice1106 have all connected here.
Glad you figured out how to private message, @carleenburch, and that you offered extra support to @mollybradley3. I'd also like to add that by sharing here on the public forum about ovarian clear cell carcinoma, we can all help many more people. OCCC is rare, so the pool of people to share with is small. I'm thrilled that you, Molly, @odette@kenwood1@janice1106 have all connected here.
I am DX with clear cell stage 1c, grade 2. Had total hysterectomy. Had my 2nd chemo 2 days ago. Only side effects i have is a bit of numbness on my finger tips and toes. Doing yoga and walking for 40 min every day seems to help. Hope you get excellent care from your medical team.
Hi @miyonggilman, welcome to the OCCC group. Keep up the good work with doing physical activities when you're able. Have you ever attended yoga specially for people with cancer? Your cancer center may offer them.
How many chemo rounds will you have? What chemo regimen?
Hi @miyonggilman, welcome to the OCCC group. Keep up the good work with doing physical activities when you're able. Have you ever attended yoga specially for people with cancer? Your cancer center may offer them.
How many chemo rounds will you have? What chemo regimen?
Thank you so much Colleen. Miyong, first timer here.
My oncologist said, 6 round is the plan. Now i am having rashes joint pain, 4th day into my 2nd treatment of Paclitaxel/Carboplatin. I lost 2/3 of my hair so saved off the rest.
No i haven't attended that special Yoga. Will check it out.
Just wondering how you are doing. I recently had an appointment and all was well, fortunately. Prior to an appointment, I experience a great deal of anxiety although it seems a bit more manageable as time goes by. My oncologist did not recommend joining a "support group" following treatment as my circumstances are so different, I guess. After feeling very isolated at times, I joined this group as well as other on-line sites. Although I have "met" several women who have similar circumstances to mine, many of them have serious challenges to face. I find that I empathize so much with them, I become distraught at times. Many of them are significantly younger (I am in my early 60s). I continue to pursue my understanding of OCCC which is rare, but research is being done. It is associated with endometriosis so I am very interested in this condition as it afflicts all of the women in my family.
We are actually visiting Arizona this winter as a possible retirement location as we have friends and relatives in the Tucson and Scottsdale areas. One of our criteria is excellent medical care which is available at the Mayo Clinic in Scottsdale. The warm weather is certainly appealing as well.
I hope that you are doing well.
Hi Odette,
This is Miyong in Tucson. I a snow bird from Wa St.
Been treated for occc at st Mary's for 2 months. Had surgery and on 2nd round of chemo. I love being in Tucson for winter.
Hi Odette,
This is Miyong in Tucson. I a snow bird from Wa St.
Been treated for occc at st Mary's for 2 months. Had surgery and on 2nd round of chemo. I love being in Tucson for winter.
Hi Miyong, If I understand correctly, you live in Tucson and are having treatment there? There is also a St. Mary's in Rochester, MN where the Mayo Clinic is based.
A diagnosis of clear cell is hard to face, but 1C is early stage and often has good outcomes. I, too, had 6 rounds of chemo although modified because of peripheral neuropathy. I didn't have many other symptoms besides losing my hair which is traumatic, of course. Exercise was very helpful in my recovery, not only physically, but emotionally as well. I also did/and do yoga.
I hope you are getting lots of support from family or friends. Please feel free to write me.
My husband and I are planning to look at a retirement community in Tucson or Scottsdale. Warm weather is appealing. I live in New England.
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Thanks Colleen. How do I private message her?
Never mind I figured out how to private message her. Thanks for all you do!!
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1 ReactionGlad you figured out how to private message, @carleenburch, and that you offered extra support to @mollybradley3. I'd also like to add that by sharing here on the public forum about ovarian clear cell carcinoma, we can all help many more people. OCCC is rare, so the pool of people to share with is small. I'm thrilled that you, Molly, @odette @kenwood1 @janice1106 have all connected here.
I also want to let you all know about a Video Q&A coming up next week, Feb 6 at 9:30 CT. Find out more here:
> Video Q&A about Women's Cancers https://connect.mayoclinic.org/webinar/video-qs-cancers/
I am DX with clear cell stage 1c, grade 2. Had total hysterectomy. Had my 2nd chemo 2 days ago. Only side effects i have is a bit of numbness on my finger tips and toes. Doing yoga and walking for 40 min every day seems to help. Hope you get excellent care from your medical team.
Thank you Colleen! I will attend the webinar.
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1 ReactionThank you! Planning to participate.
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1 ReactionHi @miyonggilman, welcome to the OCCC group. Keep up the good work with doing physical activities when you're able. Have you ever attended yoga specially for people with cancer? Your cancer center may offer them.
How many chemo rounds will you have? What chemo regimen?
Thank you so much Colleen. Miyong, first timer here.
My oncologist said, 6 round is the plan. Now i am having rashes joint pain, 4th day into my 2nd treatment of Paclitaxel/Carboplatin. I lost 2/3 of my hair so saved off the rest.
No i haven't attended that special Yoga. Will check it out.
-
Like -
Helpful -
Hug
1 ReactionHi Odette,
This is Miyong in Tucson. I a snow bird from Wa St.
Been treated for occc at st Mary's for 2 months. Had surgery and on 2nd round of chemo. I love being in Tucson for winter.
Hi Miyong, If I understand correctly, you live in Tucson and are having treatment there? There is also a St. Mary's in Rochester, MN where the Mayo Clinic is based.
A diagnosis of clear cell is hard to face, but 1C is early stage and often has good outcomes. I, too, had 6 rounds of chemo although modified because of peripheral neuropathy. I didn't have many other symptoms besides losing my hair which is traumatic, of course. Exercise was very helpful in my recovery, not only physically, but emotionally as well. I also did/and do yoga.
I hope you are getting lots of support from family or friends. Please feel free to write me.
My husband and I are planning to look at a retirement community in Tucson or Scottsdale. Warm weather is appealing. I live in New England.