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Paralyzed Diaphragm

Lung Health | Last Active: Nov 20 5:32pm | Replies (341)

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@lisalucier

Hi, @giller198. Thanks for sharing this diagnosis of a paralyzed right diaphragm, plus your background with heart valve surgery and what has been ruled out so far. I can understand your wanting to know how this might have happened, and I applaud your persistence in trying to figure this out.

I'd like to introduce you to @wsh66, who has talked about paralyzed diaphragm, and @jmmb has also talked about diphragmatic issues and may have some thoughts on your condition and on potential surgical repair. @jgreg1954 @allisonsnow @kariulrich @kdubois @hopeful33250 also may have insights for you.

@giller198 -- what would you say have been your biggest challenges thus far with this condition?

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Replies to "Hi, @giller198. Thanks for sharing this diagnosis of a paralyzed right diaphragm, plus your background with..."

It was mentioned in this chat group. You can download an app from the Google play store for this and it comes with a link to a video that shows you how. Also I got some info from my physical therapist on diaphragmatic breathing. I would have to get with her on where she got it.
John

Allison, here's some information about the MyBreath app https://www.breathresearch.com/mybreath/
I believe it is only available for Apple app store. Research with this app is being done in collaboration with Dr. Johnson from Mayo Clinic.

There are several similar apps on Google Play, too. Which app are you using from the Google play store, @giller198?

yes I don't have apple …..have android/google play store

@colleenyoung I got looking back at all the posts and I saw diaphragmatic breathing is this different from breathing from your diaphragm as singers do? and as I mentioned here somewhere my diaphragm is paralyzed (right) also phrenic nerve

Dr Amit Sood has written several books about 'Mindfulness' & 'Resiliency' - HAPPINESS is my favorite and I believe his third book.
I was in a 2008 'paced breathing research study' with Dr Amit Sood. I had just lost most of my left lung to lung cancer. I was at the brink of life as I could not breathe. I moved heal toe, heal toe, across our living room, and had great difficulty on stairs.
When I received the work book "Attention Interpretation Therapy' with a Paced Breathing DVD. The assignment was to practice breathing with the DVD 15 minutes, a minimum three times a day. I practiced 4 hours in the morning, 4 hours afternoon and 4 hour during the night.

The once a week follow up phone call from a wonderful nurse in oncology helped me sort out hope and continue the study. It all began to work when it feel like I woke up my diaphragm, relax my my nervous system and re-train my brain to live one day at a time. This was all with the guidance of the DVD and practice, practice, practice. I now run with this downloaded on my iPhone.

Honestly, when you are hit with the cancer diagnosis, especially when it is the #1 Cancer Killer - Lung Cancer...it is very difficult to grasp
Mentally, Physically and Emotionally.

Dr Sood now gives helpful information daily on Twitter. He has also given a great TED X Talk. You can You Tube Dr Amit Sood and watch two of his talks. My journey with lung cancer has changed my life, lung cancer became my blessing. I no longer live in desperation. I have learned to live day to day and when I wake up each morning I am grateful...too five or more people daily, before I get out of bed! This all has continued to help me breathe and enjoy life. When life gets crazy I remind my brain to do things that are most positive and take a deep breath.

I truly hope this helps. All my best,

I'm using The Breathing App from the Google play store. If you download the app then open it, the lower right hand corner is a circle with an " i ", tap on it and it brings up a menu for setting up and other features.

I also found some info on diaphragmatic breathing exercises from the Cleveland Clinic. The link is my.clevelandclinic.org/health/articles/9445-diaphragmatic-breathing. Hope I got that right. I found this just by Googling diaphragmatic breathing exercises. Hope this will help.

John

There are also some great resources about Mindful Breathing right here on Connect.

See the Health & Mindfulness Page https://connect.mayoclinic.org/page/mindfulness-in-health/
Here you can read about Dr. Benzo, Mayo Clinic and his work in mindfulness and breathing. The page includes 10 blogs of mindfulness exercises as well as video and audio files for guided practice.

Thank you Colleen, I will look into this along with Dr Sood and the tedtalks

I am a U.S. Marine amputee with left lower lobe loss. I was able to exercise, walk with a prosthesis, drive a car and could breathe without any assistance other than inhalers and a nebulizer for bronchiectasis. However, in 2014, I was diagnosed with lung cancer and underwent surgical removal of the tumor in the right upper lobe. Since surgery, I have not recovered at all. I am on 6 LPM of oxygen, cannot walk, cannot lay flat or bend over, cannot take any deep or full breaths at all. I walk 2-3 steps and I have no air and cannot breathe at all. Feels like someone is sitting on my chest and I have to sit down and let my pulse come down. I was told by another Veteran that I have diaphragm paralysis. Can anyone shed some light on this, please? I am desperate and totally disgusted not being able to have any sort of normal life, let alone being able to simply BREATHE! Thank you, in advance, for any help in this matter.

Curious on paralyzed diaphragm. I’ve not been diagnosed. For 8 months I’ve struggled with pain and pressure in my diaphragm that is followed by loss of voice. It’s like no air can get through my vocals. Causes severe fatigue. Causes chest pain but only on left side. Has anyone had these symptoms.