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Non Hodgkin's Lymphoma- Watch & Wait Approach

Blood Cancers & Disorders | Last Active: Oct 7 11:27am | Replies (234)

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@travelgirl

I just want to check in with all the Lymphoma Warriors out there. How is every feeling lately?
@bordercolliecra @susanlim @ginpene05 @vonbaron36 @njnana @stephaniet @vcollins @chuck218
I travel quit a bit, and been on and off the last month. I haven't had chance to see how you are all doing?
I have my 6 month check up to monitor my Lymphoma next month.
How have all your check up's been going?
I do hope you are all doing well?
Jackie

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Replies to "I just want to check in with all the Lymphoma Warriors out there. How is every..."

Hi Jackie, thanks! I am in my first month of treatment (recent diagnosis). Today is infusion #2 of 4. Last week was 8+ hours and I had a reaction, so expecting today to be another long day. Was a bit taken aback by finally realizing that, however well this treatment works, I will ALWAYS have lymphoma. Good thing I love my oncologist! I am feeling well except for less energy than I like and anxiety(a bit) about...well, everything 😊. Overall, very grateful for excellent medical care and Insurance.

@travelgirl funny to be called a Lymphoma Warrior...my sister just sent me this shirt, along with WonderWoman socks...shirt says “WARRIOR”!

Thanks to everybody for checking in. After surgery and chemo in 2017 for stage 1 Non Hodgkins Lymphoma found on a fluke, my doc in January 2019 says I am cured and just need yearly checkups with PET scan, unless I have symptoms. So I feel pretty good, but worry about recurrences no matter what he says. I hope all of you do well. You all sound so much more challenged and braver than I feel that I have been. Hang in there, Warriors. gp