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Non Hodgkin's Lymphoma- Watch & Wait Approach

Blood Cancers & Disorders | Last Active: Oct 7 11:27am | Replies (234)

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@bordercolliecra

Hi. I am in England. I was diagnosed with Follicular NHL in August 2000. I had to start treatment as I was stage 3 as my GP had said I was having an early menopause - I was 46 at the time). I had 5 rounds of FMD as Rituximab was too expensive then. I went into molecular remission. In 2011 a lump came up on my head. My GP said it was a cyst but it grew so large I was referred to the Sarcoma specialist. Long story short it was extra nodal NHL. I had bendamustine first but the tumour regrew and I had radiotherapy. Two years ago I started with abdominal pain and only a slightly enlarged spleen was obvious on an ultrasound. I was diagnosed with IBS!! Forward to this August and I started having pains in my left side and between my shoulders. A new GP sent me for an ultrasound which showed a Splenic Cyst and slightly enlarged liver. I have also had a colonoscopy and that was clear. Hopefully I will get answers after the CT scan and seeing my Haematologist next week.

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Replies to "Hi. I am in England. I was diagnosed with Follicular NHL in August 2000. I had..."

How can I delete my posts as I put it on the wrong board. It shouldn't be on Watch and Wait?

This is fine here.. I think it's ok?

Hi @bordercolliecra, you can copy and paste your message to this discussion:
- Non Hodgkin's lymphoma https://connect.mayoclinic.org/discussion/non-hodgkins-lymphoma-2c0eb7/

Once you've done that I can delete it from this discussion. Although, @travelgirl is right. It's okay here too.