Getting off of Seroquel

Posted by anniegk @anniegk, Jun 8, 2018

I have been on 300 mgs. Seroquel ER for over a year for augmenting my antidepressant which is 45 mgs. Of Mirtazapine. I decided to try and get off of the Seroquel. I was on 300mgs ER (extended release). I titrated down to 250 mg ER for 2 months without too many problems.than i titrated down to 200mgs ER just 5 days ago. My plan is to try to titrate off using ER tablets. My thinking is that perhaps the drug will remove its self from my system more gradually. I have had some nausea and a couple of episodes of diarrhea. I also have a very irregular heart beat and was started on 60 mgs of Propranolol ER (extended release) 4 weeks ago. It seems to be helping my heartbeat. I have wondered if the nausea and light headness is from the Propranolol, a Beta Blocker, or the dose reduction of the Seroquel. I also wonder if the way iam titrating the Seroquel is safe. My doctor says it will only take a couple of weeks...I think that is too fast of a taper after being on a drug for over a year. What do you think?

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Great news !! I hope you keep improving

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@mcshibe

Hi @amandajro.
It's difficult for me to pinpoint a cause, because I don't see any meaningful one.
It is true that I feel more confident about my decision to cut some bonds but I'm far from peace of mind, as these people weren't the main cause that I feel depressed and anxious for.
In fact I'm not feeling any less depressed or anxious than in the past. It seems that only my sleep has improved.
In any case, I'll think about it more in these days, perhaps talk to my therapist, and if I happen to have a clearer picture, I'll share it in my next update.

Something I forgot to write in my previous comment is that I've even been able to take naps during the day lately. I even seem to naturally wake up after one hour or two, without the need to set off an alarm. The last time I was able to take naps successfully was about 7 years ago, right before I'd quickly fall into depression.

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@mcshibe I will be interested to hear back from you after you have time to talk with your therapist. Sleep is a major necessity and being able to sleep better, at least for now, is a good thing for you and your health.

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@linda66

I am also tapering off of Seroquel I was on 200mg xr and 200mg at bedtime. I started tapering down the Seroquel at bedtime at 50 mg increments every two weeks. Then I started tapering the Seroquel xr at from 200mg to 150 mg every two months . I am now on 50 mg of Seroquel xr. I also take .5 mg of clonazepam twice a day. I have had some episodes of insomnia so I am now taking 3mg of melatonin at night to help me sleep. The problem is that there isn't a lower dosage after the 50mg of Seroquel xr. Which makes it difficult to taper without any negative side effects. ( for example rebound insomnia). So I guess we are both having the same problem.

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Seraquel comes in 25mg. tablets. I'm on 325mg. seraquel and feel like I can't move or talk After taking it @ HS. I see my Dr. next week and have no idea what to do! I have OCD and do compulsions all nite if i can't sleep. Any suggestions? I'm so scared. Maria.

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Tell him you want off immediately, start weaning now
Get another drug it’s worse than heroin to come off and takes weeks if not months. Nasty drug

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@mariajean03

Seraquel comes in 25mg. tablets. I'm on 325mg. seraquel and feel like I can't move or talk After taking it @ HS. I see my Dr. next week and have no idea what to do! I have OCD and do compulsions all nite if i can't sleep. Any suggestions? I'm so scared. Maria.

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@mariajean03 I responded to you in another post. It is important you contact your provider regarding your symptoms right away. I wouldn't suggest weening off medications without a provider. Would you let us know what your provider advises?

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After 6 weeks of hell im free of seroquel and serious about warning others of the antipsychotic withdrawal syndrome... horrible experience

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@erikas

@mariajean03 I responded to you in another post. It is important you contact your provider regarding your symptoms right away. I wouldn't suggest weening off medications without a provider. Would you let us know what your provider advises?

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@erikas
I agree with you and the Mayo Clinic Pharmacist that patients shouldn’t get off some of these medications on their own. But realistically what other alternatives would you and your pharmacy staff recommend when physicians are either incapable or unwilling to properly get patients off these medications in a proper withdrawal-free manner. The 6000+ people in the Effexor thread are mostly from patients who have physicians who's responsibility it is to assure these people a safe and withdrawal-free taper. Not to mention all the money they are collecting for causing more misery than help. Obviously they aren't doing their job or there wouldn't be so many heart-wrenching posts. What about all the other patients on all the other websites desperately in need of help. What do you say to them, knowing they are not receiving the help they need which they pay for. What’s the answer if it’s not discontinuation by self-medicating? Please tell us what our alternative is. We'd like to know.
Take care,
Jake

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@jakedduck1

@erikas
I agree with you and the Mayo Clinic Pharmacist that patients shouldn’t get off some of these medications on their own. But realistically what other alternatives would you and your pharmacy staff recommend when physicians are either incapable or unwilling to properly get patients off these medications in a proper withdrawal-free manner. The 6000+ people in the Effexor thread are mostly from patients who have physicians who's responsibility it is to assure these people a safe and withdrawal-free taper. Not to mention all the money they are collecting for causing more misery than help. Obviously they aren't doing their job or there wouldn't be so many heart-wrenching posts. What about all the other patients on all the other websites desperately in need of help. What do you say to them, knowing they are not receiving the help they need which they pay for. What’s the answer if it’s not discontinuation by self-medicating? Please tell us what our alternative is. We'd like to know.
Take care,
Jake

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@jakedduck1 I know that it's hard to find the right care and the right provider at times. I'm not ignorant to that and it's unacceptable.

I am a therapist and I have plenty of experience with clients and their medication issues indirectly. I have seen people permanently damage their body, mind, and lives by taking or stopping their medications without provider guidance.

A close family member is a provider. As I mentioned, I am a therapist. I have worked in insurance and at the hospital before returning for my Master's in counseling. As a therapist I've worked in residential, outpatient, and in-home. I know it can be difficult to navigate the system but with persistence it can be done.

There are a few ways I have witnessed, guided, or advocated for my clients, so they can take charge of their psychiatric medications management.

1.) Switch providers. Contact your insurance and get a list of providers and specifically ask about telemedicine for psychiatry.
2.) If there are no providers in your area ask to speak to utilization management and get an authorization to see a local provider. This can be a lengthy process but it can be done.
3.) Travel to another city to see a provider.
4.) Get a second opinion.
5.) Contact the office of patient experience. There are specific weaning schedules for medications. Find out what they are and make a complaint if they are not abiding by the schedules.
6.) Contact your local county and ask for an ARMS or adult mental health case manager.
7.) Ask for a health coordinator/social worker at your local hospital.
8.) Ask for help in navigating your mental health via family, friend, or therapist.

These are just a few suggestions. I have yet to see a patient go untreated if they were persistent with the above suggestions. It's frustrating but people don't need to do this alone. Try to enlist advocates and you will eventually get there.

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@jakedduck1

@erikas
I agree with you and the Mayo Clinic Pharmacist that patients shouldn’t get off some of these medications on their own. But realistically what other alternatives would you and your pharmacy staff recommend when physicians are either incapable or unwilling to properly get patients off these medications in a proper withdrawal-free manner. The 6000+ people in the Effexor thread are mostly from patients who have physicians who's responsibility it is to assure these people a safe and withdrawal-free taper. Not to mention all the money they are collecting for causing more misery than help. Obviously they aren't doing their job or there wouldn't be so many heart-wrenching posts. What about all the other patients on all the other websites desperately in need of help. What do you say to them, knowing they are not receiving the help they need which they pay for. What’s the answer if it’s not discontinuation by self-medicating? Please tell us what our alternative is. We'd like to know.
Take care,
Jake

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Excellent reply Jake! 👏👏. When we have to turn to the internet for medical advice it becomes quite clear how serious this tapering situation is. Most doctors are clueless. The government needs to address this issue, it’s very very serious and most have nowhere to turn. I speak from experience. In my opinion it’s not really the Benzos or opioids that are hurting people it’s the manner in which folks are yanked off these drugs that are killing them. Side effects from a incorrectly done taper can damage the brain and go on for years. No one wants to talk about this though now do they?

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@erikas

@jakedduck1 I know that it's hard to find the right care and the right provider at times. I'm not ignorant to that and it's unacceptable.

I am a therapist and I have plenty of experience with clients and their medication issues indirectly. I have seen people permanently damage their body, mind, and lives by taking or stopping their medications without provider guidance.

A close family member is a provider. As I mentioned, I am a therapist. I have worked in insurance and at the hospital before returning for my Master's in counseling. As a therapist I've worked in residential, outpatient, and in-home. I know it can be difficult to navigate the system but with persistence it can be done.

There are a few ways I have witnessed, guided, or advocated for my clients, so they can take charge of their psychiatric medications management.

1.) Switch providers. Contact your insurance and get a list of providers and specifically ask about telemedicine for psychiatry.
2.) If there are no providers in your area ask to speak to utilization management and get an authorization to see a local provider. This can be a lengthy process but it can be done.
3.) Travel to another city to see a provider.
4.) Get a second opinion.
5.) Contact the office of patient experience. There are specific weaning schedules for medications. Find out what they are and make a complaint if they are not abiding by the schedules.
6.) Contact your local county and ask for an ARMS or adult mental health case manager.
7.) Ask for a health coordinator/social worker at your local hospital.
8.) Ask for help in navigating your mental health via family, friend, or therapist.

These are just a few suggestions. I have yet to see a patient go untreated if they were persistent with the above suggestions. It's frustrating but people don't need to do this alone. Try to enlist advocates and you will eventually get there.

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Sounds good on paper, it’s just not reality, Erika. The doctors who get you addicted can’t wait to get rid of you and most doctors don’t want to take on another doctors problem. I’ve been told right to my face, “you need to refer back to your original prescriber”. This happened when my doctor of 25 years abandoned me after telling him I wanted to taper Xanax. I live in a very large city with tons of physchiatrists and neurologists. It took months to find a new doctor. Most horrible experience I’ve ever been through being turned down by doctor after doctor. I had a breakdown which landed me in the hospital for three days. First thing they did was remove the Xanax and put me on Buspar. Lol!

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