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It's not all about the MELD Score

Transplants | Last Active: Nov 14, 2023 | Replies (217)

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@amyintucson

I'm approaching my 6 month transplant anniversary (6/28) and am physically doing well. My post surgery kidney issues are still problematic and having some side effects from the meds - losing hair, some tremors and insomnia. All of those are pretty minor in the scope of things. I will be stopping the Valcyte and Bactrim on Friday and we'll see how my body responds.

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Replies to "I'm approaching my 6 month transplant anniversary (6/28) and am physically doing well. My post surgery..."

@amyintucson
Yay you, six months is a great milestone. I'm sorry to hear you are experiencing side effect, it happens to the best of us. I lost a lot of hair after my transplant (thankfully I started out with a lot) my docs said some of it was just my body experiencing trauma from being sick and the shock to my system from the surgery. I eventually was put on Vitron C which is a heavy dose of Iron with Vitamin C for added absorption to get my hemoglobin (iron levels) back in the "normal" range. Not sure what the trick was but eventually things settled down. Don't hesitate to ask your Docs and Nurses for help. I also found out during this time that hair loss is best addressed by dermatologists and the sooner the better. Hope this helps, Happy 6 month Kidney-versary.

@amyintucson my 7 mo post transplant is June 28. My post operative symptoms are thinning hair, fatigue, and tremors. The tremors are believed to be caused by the tacrolimus (prograf). I only take 2mg daily of the tacrolimus. My appetite isn't back to normal either. I'd still take this over my pre surgery symptoms.

@amyintucson My transplant team at Mass General Hospital also recommended biotin, as @cmael mentioned. The only side-effect is that it can cause inaccurate results on a TSH test. My endocrinologist told me it doesn’t effect the thyroid, just the test, so if that is a test you need to have you should stop taking it a few days before the test.
JK