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It's not all about the MELD Score

Transplants | Last Active: Nov 14, 2023 | Replies (217)
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@jeanne5009

@rosemarya
Well I am wondering if the Drs have any clue what path this disease will take. Going to my hep Dr tomorrow and that is one of my many questions for her.
The itchiness from excema is gone for now...but still on the fri ge. Now they are concerned about my heart so I have a heart monitor for 14 days and a catherization next Wed. Oh yes..a sleep study and test too.
The MRI I had at Mayo was all good except for a spot they found on the lung..ultrasound cleared that...
.whew!
If they could only tell me what comes next.....that doesnt happen with this disease...we are all different. PS I am very fortunate to be a patient of the transplant team at Tampa General Hospital and Mayo Jax Transplant team. I have meld of 6 down from 8. So, I know Im getting very good care and they traet me as if my meld were 20. Not on the hot list deemed too early.

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Replies to "@rosemarya Well I am wondering if the Drs have any clue what path this disease will..."
Rosemary, Volunteer Mentor | @rosemarya | May 6, 2019

@jeanne5009, I hope that you get some good news tomorrow with your hep Dr. I think that it might be a good thing that you are not on the list yet, because all of these complications would cause you to be inactivated. So maybe it is best that you can get everything addressed now while your liver is maintaining itself.
I used to use the analogy of a row boat that kept popping new holes as fast as the old ones could be plugged. On my good days I could picture an old cartoon image. At least the boat never sank, but it was hard work to keep it afloat.

Stay strong. You are in good care.

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