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It's not all about the MELD Score
Transplants | Last Active: Nov 14, 2023 | Replies (217)Comment receiving replies
My liver doctor emailed me. My electrolytes and kidney function look good, lab mostly unchanged. I still have itchiness at night, up every hour using the bathroom, and feel fatigued during the day. I haven’t had any Ascites or weight gain for 2 months. I will speak to her tomorrow. My thoughts are since my condition is stable, with my last Meld score being a 12, that my case will not be presented to the transplant team (Univ Pa-Philly) and it will just be just wait and see. I wish there was more of a definitive course of direction.
Replies to "My liver doctor emailed me. My electrolytes and kidney function look good, lab mostly unchanged. I..."
@johnshaw - My liver disease was originally diagnosed at UPenn, the hepatologist was Karen Krok (now at Penn State Health.) I lived in Central NJ at the time and was very pleased with the treatment. I moved to Tucson in 2011.
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@johnshaw I am sure you must be feeling very frustrated. It's good that you haven't had ascites or weight gain, I never had ascites until very shortly before my transplant, although I did get edema at times. Both were very bad near the end. I had lost weight previously and it was a good thing I hadn't thrown out my old clothes because they were the only things that fit me, and I could only put slippers on my feet.
I guess you have to be happy that things are stable and that your condition is such that your MELD is low. I have heard that some people can go for very lengthy amounts of time without having a transplant, so perhaps you will be one of those. If you are feeling well, have few symptoms (no HE?) then it sounds like you can live a pretty normal life. I would assume they must consider your cirrhosis to be compensated.
JK