It's not all about the MELD Score

That's good. Thank you.

@rosemarya
I wear one and have several from Lauren'sHope.com
Both men and women.

@rosemarya I had given that a thought, but then forgot about it until you mentioned it. I'll have to talk to my husband about getting one after his surgery.

I have worn the same "silver" one for 9 years! It can be 'dressed up' by adding an extra bracelet on my wrist, or worn 'as is' like I did last week during my hiking adventure. The important thing for me it to wear it all the time.

I opted to get mine thru MedicAlert Foundation because they provide a 24 hr phone number that will connect the emergency services to my current medical status.
There is an annual feel for this service. However, I can update my medical history and changing medications as needed. Also provides a means to add my personal contact info, and most important to me (and comfort to my husband) is that I can include the 24/7 emergency call number to Mayo Transplant Dept. Here is their site ( https://www.medicalert.org/ )

While I was post transplant status, and during the preparation to go home phase of my recovery, my transplant team recommended that I wear a medical alert ID. They did not recommend any particular type. I think that you might hear more about this after husband's transplant.
My son, a first responder, says that the emergency personnel are trained to look for the medical ID's.

Rosemary

@gaylea1, I finally took the opportunity to look at diamond crystal art. I can understand the fascination with it! I used to do counted cross stitch and it was hard to put down because I always wanted to see what it was going to look like. The good thing is that you do not have to be in a hurry (you can't be in a hurry) when you work on it. I think it will be lovely when it is finished.

I never used to get more than 2 hours of sleep at a time, either. And my belly was so swollen with ascites that I could only sleep those 2 hours if propped up. So I completely understand your current misery.

Also, do not be concerned about errors! I have funny incident to share as a result of spell check on my iPhone. A couple of years ago, when I was at Mayo and had just completed my annual transplant checkup, I texted my brother from a restaurant that the doctor told me that 'my liver and kidney are happy'. Gotta love spell check because it sent that 'My lover and kidney are happy!' My husband and I almost choked when he sent his reply;-)
I hope that you are feeling as okay as is possible for now.
Hugs,
Rosemary

I just had my one year check up and have been on the for the same time. My MELD was high enough at one point for me to be activated. At this check up my MELD has gone down to 11. I feel bittersweet about it. I’m going to work on moving on to goals I thought I would have to address after transplant - change in housing, etc.

@kltchrmn, I can understand your 'bittersweet' reaction to your changed transplant status due to the lowered MELD score. Liver disease has a way of causing confusion and upheaval in all aspects of life. I believe that you are making a wise choice by going to work and moving on to your goals. When/if you do become activates, there will be no way of knowing how long you will wait for a transplant or how you will be feeling. Each one of us is different and our bodies, our diseases, our medical histories play such a unique role in what will happen. You will be happy to have a normal routine that you can participate in as long as you are able.

Sometimes, with dietary modifications, avoiding alcohol and certain medications, and treatment, the liver damage can be reversed; sometimes there is no cure except transplant. I had Primary Sclerosing Cholangitis (PSC) and there is no treatment to reverse the damage. But I was monitored carefully throughout my entire time with the disease. I did have a successful transplant.

Do you know what caused your liver condition? And did you make any healthy changes that were responsible for the better score?

@rosemarya I was diagnosed with fatty liver disease and cirrhosis at the same time. I was activated last year when my MELD hit 26. I remain activated for now.

@kltchrmn I am always amazed when I hear of MELD scores going down like this. I really don't understand how that happens. I thought the best I could do was to slow the progress of my cirrhosis, and my MELD continually increased slightly.
Since yours is down to 11 now I hope that indicates that you are feeling fairly well also.
JK

@rosemarya Rosemary, am I incorrect in thinking if it has progressed to being cirrhosis that it cannot then be reversed? I know that fatty liver can be, but I was under the impression that cirrhosis could not be.
Thanks. JK