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Meniere's Disease

Ear, Nose & Throat (ENT) | Last Active: 1 day ago | Replies (215)

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@trishanna

@joyces Wow! Just read your new posting! It's one thing to handle V&V in the comfort of your home, but my admiration that you haven't let it stop your life. Agree about emergency rooms. My husband took me there one night, we arrived in the middle of a neighborhood shooting, and I was diagnosed with some terrible stomach problem and urged to enter the hospital immediately for surgery! Take care - you are inspiring.

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Replies to "@joyces Wow! Just read your new posting! It's one thing to handle V&V in the comfort..."

That's the important thing: ignore any doc that tells you to stop living, esp. stay in bed!! During the years that I moderated the Meniere's Discussion Group, I learned that the people trying to get disability, which many docs recommend, were all extremely unhappy. In order to be officially disabled, you must prove that you have no ability to do anything useful. It's a really bad program.

I am very proud of the fact that during the four years of hell with 2-3 V&V crises every week, every single issue of both magazines went to the printer on time. I'm also really glad that I didn't shrivel back into my shell and miss all the great wilderness adventures we had while we both worked for the same publisher. We were a team, both photographers, both writers. You'd think that spending a week gratis at a luxury lodge would be a great deal (and it was in many ways), but you spend time doing background interviews of the owners/managers, staff while others are relaxing after a long day fishing. You put down your rod to photograph guests with fish: you need to have photos of people other than yourselves. If the lodge manager says, "Boy, those red and white flies are really working this week. Could you tie up a couple dozen tonight after dinner?" you get out your vise and materials and get to work. If the guide asks you to help a guest with his casting, you do it. You always give the paying guests first shot at the water they want to fish. I once removed a fly lodged in the butt of a very rich Texas oil man...all part of the deal. In return, we saw parts of Alaska we could never have afforded to see if we'd been paying. We used to fly up to Alaska every summer for three weeks or longer, usually visited two lodges for a week each, plus one or two day or overnight trips, and still had time to visit Marty's family--all of them still live in Alaska; he's the only one who lives Outside.