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@kimhal

Thanks for this.... it sounds all to familiar. He does take the lipoflavanoid pills as well. He can feel an attack comming on but sometimes it comes on so fast he is out of commission for yes 12 to 24 hrs in fetal position. Noises do bother him as well at times. He was told he would benefit from a cochlear implant but they want to know why his symptoms have not subsided and have been constant. Is what we were told. Nobody seems to know so they just send us to other specialists. He has been on the prednisone and it did nothing he was told also they could go ahead and inject prednisone into his good ear but he could lose his hearing completely and that is not something we want to go through. Especially since he is deaf in the other ear. It is so frustrating. He last neurologist he seen 3 yrs ago pretty much made him jump on one leg and walk forward touch his nose and sent him on our way. So this is why I'm thinking about the mayo clinic where we could maybe get some concrete answers and info since it has been a run around here we have gotten nowhere since dec. Pretty sad and a let down!

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Replies to "Thanks for this.... it sounds all to familiar. He does take the lipoflavanoid pills as well...."

sounds like a good idea!! good luck!!!

@kimhal, you mentioned that you are considering calling Mayo Clinic. Should you wish to, here is the contact information for all 3 campuses in Minnesota, Florida and Arizona http://mayocl.in/1mtmR63