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@estrada53

Hi @kimhal. I've have hearing issues since my early thirties, was diagnosed with Meniere's at 40 and wear bi-cross hearing aids. I am deaf in my right ear and the hearing aid acts as a transmitter to a receiver/hearing aid in my left ear , which has a moderate to severe hearing lass. I have had several major episodes of vertigo along with crawling to the bathroom to regurgitate for an hour and then to bed for nearly 24 hours in order to recalibrate and rebalance my body. I have had to feel along walls to make it to a bathroom and I had to have a neighbor walk me into my house so I wouldn't fall over. I had to pull off of Lake Shore Drive, crossing over several lanes, nearly running into other cars. The fire department had to take me to the hospital. It got to the point that I could sense when an episode was nearing and I would count the minutes until I could arrive home. Anti-nausea meds and valium did nothing to help the episodes and I didn't enjoy taking any drugs. I gave up caffeine, went on a low-sodium diet - sodium is everywhere -and reduced my sugar. As the years went by, this occurred less and less and I haven't had an episode in over 10 years. At the same time, I was working full time - inconvenienced but not incapacitated. When I first began to lose my hearing, doctors thought I might have systemic lupus, the only disease they think can cause hearing loss. I did not. It ends up that I was later diagnosed with sarcoidosis, another auto-immune disease which eventually led to my heart transplant at Mayo. The sarcoid went to my lungs, my eyes, and I believe my ears as well, and my heart. My heart transplant doctor at Mayo still has me on prednisone to protect my heart and the rest of my body from any recurrence of the sarcoid. I do have the tinnitus and tried LipoFlavonoid, didn't perceive a difference until I stopped taking it. My ENT says it can help in perhaps 1/3 of patients with ringing in the ears. Wearing my hearing aid definitely distracts. I hope this helps on some way. We are all so unique, have other issues and medicine is still evolving. Wishing you and your husband positive steps in resolving this for him.

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Replies to "Hi @kimhal. I've have hearing issues since my early thirties, was diagnosed with Meniere's at 40..."

Hi @joyces .... I meant to send this to you as it pertains more to Meniere's than just tinnitus !!! Sorry, everyone!

Thanks for this.... it sounds all to familiar. He does take the lipoflavanoid pills as well. He can feel an attack comming on but sometimes it comes on so fast he is out of commission for yes 12 to 24 hrs in fetal position. Noises do bother him as well at times. He was told he would benefit from a cochlear implant but they want to know why his symptoms have not subsided and have been constant. Is what we were told. Nobody seems to know so they just send us to other specialists. He has been on the prednisone and it did nothing he was told also they could go ahead and inject prednisone into his good ear but he could lose his hearing completely and that is not something we want to go through. Especially since he is deaf in the other ear. It is so frustrating. He last neurologist he seen 3 yrs ago pretty much made him jump on one leg and walk forward touch his nose and sent him on our way. So this is why I'm thinking about the mayo clinic where we could maybe get some concrete answers and info since it has been a run around here we have gotten nowhere since dec. Pretty sad and a let down!