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Meniere's Disease

Ear, Nose & Throat (ENT) | Last Active: May 30, 2023 | Replies (211)

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@joyces

I am working on getting an appt. with a doc who specializes in Meniere's AND CIs. The hearing test I had over a week ago was in order to get referred to this "higher up" guy. I don't expect miracles to happen, though. I've always been frustrated by hearing tests because I DO hear, just cannot understand much of the time. If I could take larger doses of HRT, I'd be hearing much better, but docs are afraid of having "mature" folks take hormones at all, let alone enough "just" to maintain hearing. "Learn to get used to it," the doc at the testing place said. Wonder how he'd like to live this way?????

The one thing I am sure of at this point is that VRT (vestibular rehab) prevents crises. I believe that crises are a response to attempting to use our eyes for balance, which is all bad. Every time we move or move our head, our focal point changes, meaning we don't know where we are until we "recalibrate." Once you've really learned VRT, using your third balance system instead of the your eyes (second balance system), balance is far, far better.

I like your analogy of feeling like there's a bucket over your head--good description! I'm working on a huge report about the various types of water withdrawal here on the central Oregon coast. The outcome of this pilot project will determine how water is allocated throughout the entire state, so it's really, really important. Some of the things I've worked toward for decades are falling into place, but not being able to hear during meetings or over the phone is making work very difficult. This will probably be the last really big thing I accomplish (I'm 77 now), kind of a capstone to decades of working for the environment and fish. With that in mind, I WILL find ways to participate, get the damned bucket off my head!

I'm looking at a new app just for Android devices called Live Transcribe. It sounds as though it will make it possible for me to see what's being said in a group situation on a phone or tablet. There's also an IPhone app that works for phones, but won't work for my office because we live in the woods with zero cell reception. I'm stunned that neither the various hearing clinics nor techs are aware of how to deal with having no reception. Surely we aren't the only people who live in the shadow of a high hill! We are, after all, only a little over a mile from a huge tribal casino, like it or not.

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Replies to "I am working on getting an appt. with a doc who specializes in Meniere's AND CIs...."

I did VRT, but it did no help.....
Now I am dealing with my deaf left ear and the cochlear implant that does not work.
The right ear is very compromised , I have a hearing aid in that one. Horrible attack last week were the vertigo took me to the emergency room....
After 35 years living with this, I did everything!!!!!!! but....it is what it is....
I going for private yoga classes , meditation and all the possible things to try and control the stress that living like this brings.
Everyday I wake I say, "today its going to be better" and every night I go to bed and say to myself...."tomorrow is going to be better"....I am waiting for a miracle...