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Meniere's Disease

Ear, Nose & Throat (ENT) | Last Active: 6 days ago | Replies (215)

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@susyq213

Hello I suffer from menieres disease, any body to share experiencies?

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Replies to "Hello I suffer from menieres disease, any body to share experiencies?"

First, are you certain that you have Meniere's? About 80% of people diagnosed with Meniere's actually have some other inner ear disease. Regardless, you should keep a diary or calendar showing the kind of day you've had (good, so-so, bad, awful) and even the smallest thing you did that was different. Most Menierians have triggers that cause bad days and/or crises. Triggers can be stress, lack of sleep, inhaled allergens, food allergies (esp. dairy), lack of sleep, or low hormone levels (esp. if you're 40 or older). You can have more than one trigger, too. Over a period of weeks or months, you may be able to learn what your personal trigger is and do whatever you need to do to deal with it. I've had Meniere's for well over 50 years, but it only became a serious problem when I quit taking birth control pills (hormones) in my mid 40s. I spent 4 years working to find hormone replacement (HRT) considered safe for someone my age that kept the disease in control. During that time, I lost most hearing and balance function in my right ear. Over time, I was able to reduce the amount of HRT (you need less as you age) until I was taking a fraction of what I'd initially used. I did vestibular rehab every day and was able to function well, although age-related deafness increased in my left ear over time. Then, on May 24 at 6:45 p.m., my left ear quit hearing useful sound and roaring tinnitus moved in. So, I've just joined this group in the hopes of finding text-to-speech apps that will enable me to continue to live an active life at 77.

Hi @susyq213, welcome to Connect. You'll notice that I moved your message to an existing discussion about Menieres Disease (https://connect.mayoclinic.org/discussion/menieres-disease-2/). I did this so that you can more easily connect with other members with a similar experience, like @morninglory @grannyjack @estrada53 @trishanna and others. Click VIEW & REPLY to see past posts and add a reply.

Susyq, how long have you been living with Menieres? What do you find the most challenging?