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morninglory (@morninglory)

Meniere's Disease

Ear, Nose & Throat (ENT) | Last Active: Aug 12 8:18pm | Replies (163)

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@estrada53

Hi everyone. I've had Meniere's since 1992 when I was 39 years old. It caused years of episodes, vertigo and hours of regurgitation. I would literally crawl to the bathroom, because I couldn't walk. I was given diazepam to calm the vertigo, along with nausea medication and all to no avail. I had an episode while driving 60 miles an hour on Lake Shore Drive in Chicago. Nearly killed myself and other folks. Then I stopped using caffeine, lowered my sugar intake and went all low-sodium. I have not had an episode in over 12 years. I do have tinnitus – the ringing in my right ear, where I am now deaf. I wear bi-cross hearing aids. I have tried Lipo-Flavonoid – available at most pharmacies and at Target, etc and online. I did notice a decrease in the ringing. Rehab absolutely worked and I kept the pictures of the exercises on my inside cupboard doors for many years. Whenever I would begin to "feel" the onset of an episode I would begin the exercises. Retraining the brain. Hope this helps someone.

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Replies to "Hi everyone. I've had Meniere's since 1992 when I was 39 years old. It caused years..."

@estrada53 Thanks for this information I'm glad you are safe Haven't tried Lipo -flavonaid Will get some payday My problem now is the vertigo I have done the ear exercises but they haven't helped this so I don't know what to that think.

I have had Meniere's since my early 40's (now 58). The severe dizziness and nausea has subsided but I have lot almost all of the hearing in that ear. Trying a one sided hearing aid but still not able to discern sound location and speech clarity. Are you having luck with your bi-cross hearing aids? Meniere's has a lot of challenges to work through. I had lost a lot of hearing in my affected ear and then had a sudden onset of almost all hearing about a year and half ago. This has really been a challenge. Feel disoriented and slightly uncoordinated. Hard to explain. Open for suggestions.

I have had no episodes since totally stopping caffiene. No sodas, no coffee, no tea…. no caffeine period.

Hi there, what exercises are you referring to? And , did you give up driving completely ? I am
Scared to drive.