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← Return to Elevated ammonia levels
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Digestive Health | Last Active: Feb 25 1:06pm | Replies (48)
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@jk You have been very supportive. Thank you again. You are correct. I think mobility is part of the recovery process. At this point in time my husband mobility comes and goes with his ammonia level. That is why I want the drug RAVICTI It would improve his condition and increase his stamina. Lactulose causes severe diarrhea and he is locked to his bathroom closeness. It also saps his energy Talked to 3 doctors now about this and all I get is that is not good and that should not happen. All I think when they say this is "what the what????"
Replies to "@JK You have been very supportive. Thank you again. You are correct. I think mobility is..."
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@chrissey Lactulose is one of the few drugs that have to be "titrated" by the patient. If he has too many bowel movements he needs to cut back a bit on the lactulose. When I was in the hospital once for an HE Episode the hospitalist who discharged me put me on the maximum dose. It was unbelievable. I had to basically stay in the bathroom because if I didn't, I wouldn't make it there. I ended up basically cutting that amount in half.
Speak to the doctor about this, but this is what I was told, both by the local hospital I was in for HE episodes, and by MGH where my hepatologist is. When you and he are able to get him on the correct dosage he should have about three loose bowel movements a day. Some days I would not and I would temporarily increase the amount of lactulose I took. It's really a tightrope. When you get it right though, you can get out of the house and do things.
JK