Adults On The Autism Spectrum

Posted by Mamacita, Alumna Mentor @mamacita, Apr 29, 2018

Maybe you were really shy as a child. Perhaps you took home a huge stack of books from the school library, read them, and returned them the next day. Or did your best friend find you crying in your closet, unable to answer the question "Why?" At any rate, your life could be traced to the Self-Help section of the local bookstore. Unfortunately, most of the books were not much help. ADHD seemed to fit, at times. Your shrink said you might be Bi-Polar, although she wasn't really certain. All you knew was that you rarely fit in, anywhere. One day at work, it hit you square in the face: I don't speak these people's language! Really, it was like you were all playing this game, and everyone knew the rules but you. You couldn't tell a joke, and you never "got" any joke your co-worker tried to tell you. People started getting annoyed with you, because you had a memory like a steel trap. They didn't appreciate it when you called them on the carpet. Who knew? This was my life, and worse. I finally aced several tests that pointed me to the answer to my questions. The Autism Spectrum. Guess what? Little kids with Autism grow up to be Adults with Autism. Diagnosed late in life? This is the place for you!

Interested in more discussions like this? Go to the Autism (ASD) Support Group.

@mamacita

Friends, we have tornado sirens going off here in North Alabama. So much I want to say to you and hopefully we will be ok and back online tomorrow. Keep the faith and stay srong.
Love and light,
Mamacita Jane

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@mamacita and all in the path of the nasty weather - Please be safe. Check in with us later, so we know everyone is okay. We care!
Ginger

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@mamacita

Friends, we have tornado sirens going off here in North Alabama. So much I want to say to you and hopefully we will be ok and back online tomorrow. Keep the faith and stay srong.
Love and light,
Mamacita Jane

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@mamacita Be safe prayers coming to Alabama

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@lioness and @gingerw 😊😊we have an all clear. We had a few tense moments. But we are alright. There were multiple injuries, and a couple lost their lives. We will know more in the morning. We are so thankful to have made it through. And so sad for those who have suffered such great loss.

Stay safe, everyone.

Mamacita Jane

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@mamacita Glad to hear thanks for letting me know

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@mamacita

@lioness and @gingerw 😊😊we have an all clear. We had a few tense moments. But we are alright. There were multiple injuries, and a couple lost their lives. We will know more in the morning. We are so thankful to have made it through. And so sad for those who have suffered such great loss.

Stay safe, everyone.

Mamacita Jane

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That is so sad for those who have suffered such loss, @mamacita, especially their lives. Wow. That is sobering. Glad you have made it through.

Catching up with you about your daughter, Mamacita, it sounds as though you have very wisely - and in all protection for you and your husband, your grandson who lives with you and even ultimately her best interests - set some boundaries. I can only imagine that is hard to do, yet you know in your gut that it's for the best for all involved.

The story of your grandson wanting to go buy a Christmas card for his other grandmother who hasn't seen him in 2 years and stick it in her door is absolutely heartbreaking. You surely are doing much good in his life to be seeing such sweetness, and when he knows it potentially may not be reciprocated.

Did your daughter go stay with her other friend?

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@lisalucier

That is so sad for those who have suffered such loss, @mamacita, especially their lives. Wow. That is sobering. Glad you have made it through.

Catching up with you about your daughter, Mamacita, it sounds as though you have very wisely - and in all protection for you and your husband, your grandson who lives with you and even ultimately her best interests - set some boundaries. I can only imagine that is hard to do, yet you know in your gut that it's for the best for all involved.

The story of your grandson wanting to go buy a Christmas card for his other grandmother who hasn't seen him in 2 years and stick it in her door is absolutely heartbreaking. You surely are doing much good in his life to be seeing such sweetness, and when he knows it potentially may not be reciprocated.

Did your daughter go stay with her other friend?

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@Lisa Lucier, my daughter is still at the home of her friend who off and on threatens to kick her out. It is a precarious situation.

My Grandson picked out a beautiful card for Grammy. He told me that he just hoped she was doing ok. That He was a bit worried about her. We don't even know if his father is still alive.

Last we heard he was living with Grammy. I don't understand how anyone could live with themselves, not seeing that beautiful child and never spending time with him. He is so kind, funny, smart, and sweet.

All of this has had its effect on my Grandson. He does not like to go out and be around a lot of people. I wish people would think before they speak, and not ask questions about who he "belongs to." I think it tears him apart to be discussed every time he meets someone new. And even people we know and love will ask us "How is Lindsey doing?" (Fake name)

Oh, she's still a recovering drug addict, and has permanent cognitive impairment in the area of judgement, thanks for asking.

How is she doing? She is totally disabled and dependent on others for almost everything.

I think Papa and I have some work to do. There has to be a way to make things better for our Grandson. If we cannot change other people, then we must change what we can in our own day to day experiences .

@lisalucier, thank you for your compassion. You have helped me to see things in a different light.

Love and cyberhugs,
Mamacita Jane

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@mamacita

@Lisa Lucier, my daughter is still at the home of her friend who off and on threatens to kick her out. It is a precarious situation.

My Grandson picked out a beautiful card for Grammy. He told me that he just hoped she was doing ok. That He was a bit worried about her. We don't even know if his father is still alive.

Last we heard he was living with Grammy. I don't understand how anyone could live with themselves, not seeing that beautiful child and never spending time with him. He is so kind, funny, smart, and sweet.

All of this has had its effect on my Grandson. He does not like to go out and be around a lot of people. I wish people would think before they speak, and not ask questions about who he "belongs to." I think it tears him apart to be discussed every time he meets someone new. And even people we know and love will ask us "How is Lindsey doing?" (Fake name)

Oh, she's still a recovering drug addict, and has permanent cognitive impairment in the area of judgement, thanks for asking.

How is she doing? She is totally disabled and dependent on others for almost everything.

I think Papa and I have some work to do. There has to be a way to make things better for our Grandson. If we cannot change other people, then we must change what we can in our own day to day experiences .

@lisalucier, thank you for your compassion. You have helped me to see things in a different light.

Love and cyberhugs,
Mamacita Jane

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@mamacita As I was reading your post, the last of ABC's Good Morning America was airing. Andy Grammer was singing this song, and the words simply struck me as appropriate for your situation. The words are powerful and brought up strong emotions in me. May you experience the love and support you give so freely to those in your circle, returned to you this year.
https://www.youtube.com/watch?v=bDwNbi-3O-k
Ginger

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Hi all, we opened a new group dedicated to autism spectrum disorder (ASD). Whether you’re an autie yourself, a parent or caregiver, or simply someone trying to get some answers, I invite you join me in creating a safe, welcoming place to talk about autism from toddlers to seniors. +Follow the new group (https://connect.mayoclinic.org/group/autism/) and join the discussions.

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@lisalucier

Hi all, we opened a new group dedicated to autism spectrum disorder (ASD). Whether you’re an autie yourself, a parent or caregiver, or simply someone trying to get some answers, I invite you join me in creating a safe, welcoming place to talk about autism from toddlers to seniors. +Follow the new group (https://connect.mayoclinic.org/group/autism/) and join the discussions.

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Is this replacing the current group or in addition?

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@auntieoakley

Is this replacing the current group or in addition?

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Good question, @auntieoakley. The Adults On The Autism Spectrum discussion thread was originally a discussion within the Mental Health group. As the discussion grew as well as members, it was time to move this discussion and others into a space of their own dedicated to Autism.

- Click this link to see the Autism group "home" page and the complete list of discussions https://connect.mayoclinic.org/group/autism/
- (Re)-Introduce yourself in this discussion https://connect.mayoclinic.org/discussion/meet-others-living-with-autism-come-say-hi/
- Start a new discussion any time you'd like to talk about something in particular

Make sense?

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