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Parkinson's plus Multiple System Atrophy (MSA)
Parkinson's Disease | Last Active: Dec 10, 2025 | Replies (63)Comment receiving replies
Hello @pammettee
Welcome to Mayo Connect. My name is Teresa and I am a volunteer mentor on Connect. I appreciate you bringing up this topic.
I have not seen anyone talk about this on a post, however, I did look up some information on this PD related disorder on the WebMD website. Here is the link, https://www.webmd.com/parkinsons-disease/tc/parkinson-plus-syndromes-topic-overview. As WebMD tends to give user-friendly explanations this might help explain to our Members what Parkinson's Plus MSA is all about.
If you are comfortable sharing more, could you tell us if this was a recent diagnosis for yourself or for a family member/friend? If so, please share with us how this diagnosis came about and what symptoms were experienced.
At Mayo Connect we all learn from each other. I look forward to hearing from you again.
Teresa
@chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @aperob @caryp43 @burgle @macbeth @knightkris @pjsammy7 @bobbieingeorgia @gulfer @mojo1965 @brittalisse @ruby7dnj @brittalisse @moso @retairforceman @elizabethbryant @meggotty @ruby7dnj @lsdemspey @oronogo @melmaury @mariemarie @sainath
Replies to "Hello @pammettee Welcome to Mayo Connect. My name is Teresa and I am a volunteer mentor..."
My husband received this diagnosis this week at UT Southwestern Medical Center. His next step is to get an appointment at their MSA Clinic; he said to expect a two month wait. We would love to see posts regarding this rare disorder as this is new journey for both of us. This is my first post; I don’t know if it’s going to everyone or only one person. I’m hoping it’s going to the whole group.
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Hello,
My husband was an MSA patient at Mayo Clinic. As his spouse of 32 years and caregiver for seven, I joined Defeat MSA Alliance as an advisor, in hope that I can help other families navigate their MSA journey. I have been charged with researching grants that may help MSA patients and their families. Can anyone at Mayo point me in the right direction.
Thank you,
Jodi O'Toole