← Return to Parkinson's plus Multiple System Atrophy (MSA)

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@hopeful33250

Hello @pammettee

Welcome to Mayo Connect. My name is Teresa and I am a volunteer mentor on Connect. I appreciate you bringing up this topic.

I have not seen anyone talk about this on a post, however, I did look up some information on this PD related disorder on the WebMD website. Here is the link, https://www.webmd.com/parkinsons-disease/tc/parkinson-plus-syndromes-topic-overview#1. As WebMD tends to give user-friendly explanations this might help explain to our Members what Parkinson's Plus MSA is all about.

If you are comfortable sharing more, could you tell us if this was a recent diagnosis for yourself or for a family member/friend? If so, please share with us how this diagnosis came about and what symptoms were experienced.

At Mayo Connect we all learn from each other. I look forward to hearing from you again.

Teresa

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Replies to "Hello @pammettee Welcome to Mayo Connect. My name is Teresa and I am a volunteer mentor..."

Hello,

My husband was an MSA patient at Mayo Clinic. As his spouse of 32 years and caregiver for seven, I joined Defeat MSA Alliance as an advisor, in hope that I can help other families navigate their MSA journey. I have been charged with researching grants that may help MSA patients and their families. Can anyone at Mayo point me in the right direction.

Thank you,
Jodi O'Toole