Overmedication with cancer and other conditions
A lot of us with cancer are getting older and have comorbidities (new word I have acquired on this journey), so a danger is that we need a lot of medications to control not only pain but blood pressure, thyroid etc. We can be caught up in a tangle of medications all with their side-effects and possibly interactions. Do you have any tips about how to manage this?
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Indiana Scott - you bring up another interesting point regarding medications. When you have multiple doctors involved in the care of one patient meds can get confusing. Each doctor is 'tasked' with certain duties for a patient. In the case of cancer, it's curing cancer and sometimes that seems to be at the exclusion of other concerns (sometimes). It's their job and 'ego' to cure or get cancer in remission. At times that can be at the cost of side effects from drugs or other conditions that send you off to another type of doctor. Of course, not all doctors think so singularly.........some do consider the side effects and long term effects of treatments and medications. But I do believe any patient either needs a caretaker or support person in their corner or if they're on their own.....a group like this that gives them multiple perspectives. I liked your "Kramer v. Kramer" analogy. I've hit that point a couple of times myself!
@jaler I keep my husband's drug list on the computer (sample attached). Anytime he adds/subtracts a med I can easily change the list. I print a few copies to keep with us and present it to the receptionist at every doctor's appt. While the Mayo Pharmacy would have safeguards for drug interactions for the prescriptions they fill, I wouldn't expect them to keep up with prescriptions filled elsewhere.
Sample Drug List - 04-14-2018 (Sample-Drug-List-04-14-2018.pdf)
I am going to do this today! Great idea. I've been keeping it all in my head (less space up there all the time, ha ha). Also, this would help my husband so he would have access to his drug list. He relies on me but I wasn't at an appointment it could be dangerous. Thank you!
Is there any consensus that the effects of medications vary as persons lose weight, or are unable to normally metabolize medications as a person's health status declines?
I keep ours on my hard drive, too,and check my list with the Mayo list at each visit but I don’t know whether anyone at Mayo ever looks at the list to determine drug interactions.
Good points, @cindylb In one regard we were 'lucky' (I know it is an extremely odd word for me to use here) in that we all knew it was the brain cancer that would ultimate win the war my wife was waging. As such her neuro-oncologist took a strongly focused approach to her care based on this knowledge. That said, I will quickly add I know cancer is an incredibly unique disease, which effects each patient differently, and to which each patient responds in their own manner. One size definitely does not fit all when it comes to this beast.
Strength, courage, and peace!
Hi @lisakuehl I am not any kind of medical professional, but both my wife's weight and ability to eat, drink, etc. significantly effected her dosages. While she was unable to get on a scale and greatly disliked the chair-style weighing device, the docs had me continually take certain measurements of her to estimate body weight changes and to log her eating/drinking habits. Many dosage changes were made based on changes in her physical condition as was the format of several medications (changing from pill to liquid, from a suppository to an ointment, and others). Sorry I don't know more on this.
Strength, courage, and peace!
Excellent
@gaybinator I do the same so that I don't have to drag bottles around to Dr.'s visits or try to remember and write it all out on their tiny spaced form. I do the same thing with all the procedures and surgeries I have had in the past dozen years as I could never remember dates and I would likely leave out some surgeries w/out my list. I have a similar drug list that I use to prepare my weekly drugs by the day/night every Saturday morning when not much else is happening. I would b=never get it right each day otherwise. If I happen to be medicated more than normal, my wife helps me make sure I get it right, so she does not have to worry about what I take while she is at work. I wish all of that was not necessary, but better safe than sorry.
@IndianaScott What an incredible story about meds, pharmacies and egos! You are quite the veteran of medication challenges.
Teresa