Colleen Young, Connect Director | @colleenyoung | Apr 17, 2018
Hi @brenz, I'm not sure if anyone in the colorectal cancer group has mentioned using Keytruda (pembrolizumab), but there are a couple of discussions in other groups on Connect that you may want to check out.
Hi @brenz, I'm not sure if anyone in the colorectal cancer group has mentioned using Keytruda (pembrolizumab), but there are a couple of discussions in other groups on Connect that you may want to check out.
@sc1218, welcome to Connect. You'll notice that I moved your message to this existing discussion about Keytruda and colon cancer. I did this so you can meet @brenz whose husband is also receiving or considering Keytruda treatments for colorectal cancer. Brenz, did he start Keytruda?
My husband has stage 4 colon cancer with mets to liver and lungs. He did not qualify for keytruda so we have not had the opportunity to try it. I was praying he would have qualified. I wish you the best and hope you continue to keep us posted as we are in touch with many colon cancer patients outside of this site and would love to share your experiences with them.
My husband has stage 4 colon cancer with mets to liver and lungs. He did not qualify for keytruda so we have not had the opportunity to try it. I was praying he would have qualified. I wish you the best and hope you continue to keep us posted as we are in touch with many colon cancer patients outside of this site and would love to share your experiences with them.
Im sorry your husband didnt qualify. Im stage 4 with mets to the peritneum, bladder, and lungs. I also was turned down for the last year based on my cancer being caused by chrons disease. In febuary i met two doctors willing to treat me based on my genetic markers. High tumor mutation burden. It took 2 months to get it all together. Im no longer in constant pain, side effects are nothing compared to chemo but that could change. I have my third treatment this week and first scans next week.
Dont give up if you believe imuno can help your husband. If he has any of the known markers for treatment it wont cure him but it might keep it managable.
Good luck.
Hola soy Miguel Ángel de Aguascalientes México. Yo padezco cáncer colorrectal con metástasis en hueso de cadera y pulmón izquierdo. Llevó 4 aplicaciones de keytruda y mi antigeno no ha bajado incluso ha subido ahorita está en 1800. Estoy deseperado
Hola soy Miguel Ángel de Aguascalientes México. Yo padezco cáncer colorrectal con metástasis en hueso de cadera y pulmón izquierdo. Llevó 4 aplicaciones de keytruda y mi antigeno no ha bajado incluso ha subido ahorita está en 1800. Estoy deseperado
Welcome @miguelsofisanti.
Unfortunately, I don't speak Spanish. But I put your message into Google translate (https://translate.google.ca/) so that I can respond to you. I hope you will be able to translate my message into Spanish.
YOU SAID
Hi, I'm Miguel Ángel from Aguascalientes Mexico. I have colorectal cancer with metastases in the hip bone and left lung. It took 4 applications of keytruda and my antigen has not gone down even has risen right now is in 1800. I am desperate
MY REPLY
You are not alone. @lah's husband has a similar experience, which you can read about here:
- Metastasized colon cancer: At a loss..what is next? https://connect.mayoclinic.org/discussion/at-a-loss-what-is-next/
Is your oncologist suggesting a different treatment options?
My husband has stage 4 colon cancer with mets to liver and lungs. He did not qualify for keytruda so we have not had the opportunity to try it. I was praying he would have qualified. I wish you the best and hope you continue to keep us posted as we are in touch with many colon cancer patients outside of this site and would love to share your experiences with them.
my hunnybunny has ben diagnosed with colon,anus,pubic area and mestestasized to his liver and nodules ion his lungs. how do I stop crying.. how do I get him moving and not giving up?
Connect
Connect
Like
Helpful
Hug
Hi @brenz, I'm not sure if anyone in the colorectal cancer group has mentioned using Keytruda (pembrolizumab), but there are a couple of discussions in other groups on Connect that you may want to check out.
- Head & Neck Cancer: Keytruda https://connect.mayoclinic.org/discussion/keytruda/
- Melanoma: Keytruda Treatment https://connect.mayoclinic.org/discussion/kytruda-treatment/
Brenz, did your husband's genomic testing qualify him for keytruda? When will he start?
We had the tests done awhile ago and he did qualify but waiting for more current results. Will know in next week or so.
anyone taking keytruda. ive had 2 treatments with no real side effects. would like to know how others are doing with it.
-
Like -
Helpful -
Hug
1 Reaction@sc1218, welcome to Connect. You'll notice that I moved your message to this existing discussion about Keytruda and colon cancer. I did this so you can meet @brenz whose husband is also receiving or considering Keytruda treatments for colorectal cancer. Brenz, did he start Keytruda?
SC1218, you may also be interested in this discussion on Connect:
– Immunotherapy and chemo; Keytruda side effects https://connect.mayoclinic.org/discussion/immunotherapy-and-chemo/
Have you had any treatments prior to starting Keytruda? What type and stage is your cancer?
My husband has stage 4 colon cancer with mets to liver and lungs. He did not qualify for keytruda so we have not had the opportunity to try it. I was praying he would have qualified. I wish you the best and hope you continue to keep us posted as we are in touch with many colon cancer patients outside of this site and would love to share your experiences with them.
-
Like -
Helpful -
Hug
1 ReactionIm sorry your husband didnt qualify. Im stage 4 with mets to the peritneum, bladder, and lungs. I also was turned down for the last year based on my cancer being caused by chrons disease. In febuary i met two doctors willing to treat me based on my genetic markers. High tumor mutation burden. It took 2 months to get it all together. Im no longer in constant pain, side effects are nothing compared to chemo but that could change. I have my third treatment this week and first scans next week.
Dont give up if you believe imuno can help your husband. If he has any of the known markers for treatment it wont cure him but it might keep it managable.
Good luck.
-
Like -
Helpful -
Hug
1 Reaction@sc1218 I was wondering how your husband's scans came out and if he continued on Keytruda?
-
Like -
Helpful -
Hug
1 ReactionHola soy Miguel Ángel de Aguascalientes México. Yo padezco cáncer colorrectal con metástasis en hueso de cadera y pulmón izquierdo. Llevó 4 aplicaciones de keytruda y mi antigeno no ha bajado incluso ha subido ahorita está en 1800. Estoy deseperado
-
Like -
Helpful -
Hug
1 ReactionWelcome @miguelsofisanti.
Unfortunately, I don't speak Spanish. But I put your message into Google translate (https://translate.google.ca/) so that I can respond to you. I hope you will be able to translate my message into Spanish.
YOU SAID
Hi, I'm Miguel Ángel from Aguascalientes Mexico. I have colorectal cancer with metastases in the hip bone and left lung. It took 4 applications of keytruda and my antigen has not gone down even has risen right now is in 1800. I am desperate
MY REPLY
You are not alone. @lah's husband has a similar experience, which you can read about here:
- Metastasized colon cancer: At a loss..what is next? https://connect.mayoclinic.org/discussion/at-a-loss-what-is-next/
Is your oncologist suggesting a different treatment options?
my hunnybunny has ben diagnosed with colon,anus,pubic area and mestestasized to his liver and nodules ion his lungs. how do I stop crying.. how do I get him moving and not giving up?