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Hello @ginal,
Welcome to Connect; I'm so glad you've joined us. We have so many incredibly informative conversations taking place about kidney transplant. To begin, I've listed a few below:
– Getting Listed for Transplant https://connect.mayoclinic.org/newsfeed-post/getting-listed-for-transplant/
– Kidney transplant https://connect.mayoclinic.org/discussion/kidney-transplant-1/
– It's been too long,but surely here and finally on the waiting list https://connect.mayoclinic.org/discussion/its-been-too-longbut-surely-here-and-finally-on-the-waiting-list/
I’m tagging @contentandwell @IWantToBelieve @cmael @dshaver @2011panc @sevkira @mlmcg @coastalgirl @ters1993 @bszychow @scottb32 @wmoser2613 @hardaway3 @katieslost @karis @jtannen1 and Mentor @rosemarya, as they may be able to share their transplant stories with you.
@ginal, we look forward to getting to know you and supporting you on your transplant journey; would you share a few more details about yourself?
Replies to "Hello @ginal, Welcome to Connect; I'm so glad you've joined us. We have so many incredibly..."
@cmael, This is great news! Thanks for thinking of us and sharing this update! I am happy that you and your daughter are both doing well and recovering. This is something that I want to ask you yo share in the Transplant Discussion Group when you feel up to it! I remember those busy days of doctor visits, education and labs;-)
We will celebrate with you tomorrow.
Rosemary
Thanks for inspiring story of you and your daughters’ Kidney experience. I am waiting for a donor and I enjoyed reading about your Blessing.
Denise
@cmael Wonderful that you and your daughter are doing so well. You must feel very proud of your daughter's generosity. A transplant is truly a new lease on life.
JK
Hi, I'm Gina 55 years old, live in NW Minnesota. I have had kidney disease for years, was stage 3 for along time and when I got to stage 4 it went fast. My last GFR was 23. I started Dialysis on 3/27/18 3 times a week in Grand forks ND. I plan on getting a stomach catheter put in so I can do home dialysis because Hemo makes me feel so sick. I'm trying to learn as much as I can, it can be a little overwhelming but I know it's a journey.
My daughter wants to be tested to see if she is a match but I'm having a hard time letting her. I was told God gave us two kidneys one to keep and one to share. I wish you and your daughter the best.
@ginal, I respect your opinion about your daughter donating her kidney to you, And I especially admire your determination to find your way in this maze of uncertainty. I do want to share the following link in case you and daughter would like to look at it.
The Transplant PAGES contains information for all levels of a transplant journey.
https://connect.mayoclinic.org/page/transplant/
Rosemary
@dshaver, I hope that you feel the prayers that I am sending your way.
Also sending strength and hugs.
Rosemary
@mlmcg, @gaybinator, Do you have anything from your experience that might be helpful to @ginal about dialysis. and about getting listed for a kidney transplant? This is out of my own experience, and ginal is looking for someone to talk to and to learn from.
Thank you
Rosemary
Thank you Rosemary,
My symptoms continue as I wait. I have insomnia now. It might be from the worry. My nephew was tested for Paired Donation a week ago. He hasn’t heard anything. I continue to wait as patiently as possible.
Connect
Tomorrow will be one week since my transplant. My daughter was the donor. Everything went well. In fact I was wide awake the afternoon after surgery and visiting with family. It did get worse after a couple of days with a lot of cramping followed by nasty diarrhea.Both my daughter and I wound up staying an extra day. She was having a lot of pain from the air that they inflate the abdomen with. We are both back at our rental home. She’s doing great and I’m doing well with pain-at the surgical site.We are spending our days with trips to Mayo for labs, dr visits, and education. I wish the future transplant patients the best!