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I use both Xifaxan and Lactulose. I think everyone's costs are different depending on insurance - I pay $175 for a 90 day supply of Xifaxin and Lactulose is $10 for a 30 day supply. If I stop taking either one, while my digestive system may feel better, my husband can see the difference in my concentration.
Replies to "I use both Xifaxan and Lactulose. I think everyone's costs are different depending on insurance -..."
My meld is low - I get an update tomorrow - but there are other complications that are of concern to doing the surgery so we will see.
@amyintucson I find the MELD quite confusing. Some people seem really, really sick but their MELD is in the teens and others seem to be doing better but their MELD is in the mid-20s at least. I guess if it's low you are not in jeopardy.
JK
@amyintucson Hello Amy. I used to live in Tucson for 20 yrs. I lived in the Eastside Pantano area, and mid-town Swan area. My cousin who now lives in Green Valley has Sarcoidosis also. I hope you get your transplant and that it goes smoothly. You are in the best hands that I know of, Mayo Clinic.
@windwalker - small world. I live on the eastside of Tucson near Camino Seco & Wrightstown Rd and my sister lives near Speedway & Pantano. Sarcoidosis is a strange disease. I know someone who was diagnosed with it in the lungs in the mid-80's with little to no symptoms to date. Mine showed up fast and furious in 2008 in the liver with only a small stable nodule on the lungs, but the liver has been a constant source of concern. Does your cousin have active symptoms?
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@amyintucson Mayo is of course a great place to be. Do you know your MELD? I hope you won't have to wait too long for that magical call.
JK