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Replies to "Hello My name is Marjorie King, my sister was diagnosed with Moya Moya in 2018 after..."
Stroke & Cerebrovascular Diseases | Last Active: Feb 21, 2020 | Replies (20)
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Hello My name is Marjorie King, my sister was diagnosed with Moya Moya in 2018 after a stroke and she passed away on Nov, 28, 2019. I am trying to learn as much as I can about this Disease to Advocate and Educate as many as possible.
Replies to "Hello My name is Marjorie King, my sister was diagnosed with Moya Moya in 2018 after..."
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Hi, @mking2020 - that is a very recent loss, and I applaud your interest to advocate and educate others on this disease.
Here is some information from Mayo Clinic on moyamoya that you may find useful:
- Article on moyamoya https://www.mayoclinic.org/diseases-conditions/moyamoya-disease/symptoms-causes/syc-20355586
- Video Q&A with Dr. James Meschia, neurologist, and Dr. Rabih Tawk, neurosurgeon, Mayo Clinic specialists in Moyamoya disease https://connect.mayoclinic.org/webinar/video-qa-about-moyamoya/
I'd like to introduce you to @mamabear7116, who mentioned her toddler had moyamoya, as well as @saigenicole, who talked about her daughter being diagnosed with this disease. @yolandar @hopeful33250 @sallen52 @micayla09 @rdrreed also may have some thoughts and/or resources to share with you.
You also may want be interested to know there is a Loss & Grief group on Connect: https://connect.mayoclinic.org/group/loss-grief/.
How are you doing today, mking2020?