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Moyamoya disease

Stroke & Cerebrovascular Diseases | Last Active: Feb 21, 2020 | Replies (20)

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@saigenicole

My 12 yo daughter was having headaches with tingling in her hands and face. Had an mri and an mra and was just diagnosed with moyamoya. She is having indirect bypass surgery soon. Anyone can tell me what to expect?

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Replies to "My 12 yo daughter was having headaches with tingling in her hands and face. Had an..."

Welcome to Mayo Clinic Connect, @saigenicole. Now that you have had the MRI and MRA for your daughter and have a diagnosis, I wanted to offer this Mayo Clinic information on moyamoya disease https://www.mayoclinic.org/diseases-conditions/moyamoya-disease/symptoms-causes/syc-20355586.

I'm hoping that members who have been part of this conversation here or elsewhere on Connect can offer their support and input on indirect bypass surgery, if they or a loved one has had this operation. Please meet @djangounchained @yolandar @mamabear7116 @unmaskingmoyamoya @amacd @howelljd @evazquez88. @hopeful33250 also may have some thoughts for you.

Is your daughter having the indirect revascularization procedure described here, saigenicole https://www.mayoclinic.org/diseases-conditions/moyamoya-disease/diagnosis-treatment/drc-20355591? If so, when will she be having surgery?