Anyone have experience with the SoClean Machine?

Posted by Errol, Alumni Mentor @duvie, Apr 1, 2018

Hello Everyone,
Many of us who use a CPAP, BiPAP, or other breathing devices have maybe been curious about a SoClean machine that has been advertised on TV quite a bit. I'm not sure but I would imagine that it could also be used for a Trilogy machine or any device which has the same size hoses if their equipped with a water reservoir. We purchased one out of pocket because our insurance did not cover it. It has a certain smell to the hoses after cleaning that many people say is hard to get used to. In the beginning we would disconnect the SoClean and let our BiPAP run for an hour or so to help remove any smell.
Some people say it has a clean smell to it while others say it takes some getting used to but eventually they do get used to it. Knowing that their equipment is free of bacteria gives a sense of comfort.

It works by a small hose coming off the adapter and being placed into the water reservoir oxygenating the water. No drops or chemicals in the water.

The last 2 times Lilbit has been hospitalized we have used our own BiPAP machine in the hospital because Lilbit prefers her own mask. We also brought the SoClean machine to the hospital and the Drs, nurses, and respiratory therapist were all curious how it worked. One therapist asked if we thought it actually cleaned everything. I replied, I don't know we just have to rely on the FDA information. Has anyone else been interested in the SoClean machine?

Interested in more discussions like this? Go to the Lung Health Support Group.

@lisalucier

Hi, @duvie -- thanks so much for sharing your experiences with the SoClean device. I'm thinking that some of our members who have used a CPAP, BiPAP, or other breathing devices would be curious about a SoClean machine. I'm inviting @jimhd @dawn_giacabazi @beatricefay @flor @deyo5656 @mollyb1968 @hosta @danavs @johnhans @kdubois @mzzmimm and @maureercria to share their thoughts on what you've explained about your experience with this device.

@duvie -- has this been easy to use, so far?

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I've seen alot about SoClean on television advertising and it raised my concerns.... alot. Ozone is a toxic gas with very strict limits. My first impression was that the company was not being honest because they don't disclose ozone. They came up with a cute marketing term, calling ozone "activated oxygen". I think the goal was to skirt federal law. FDA has very strict rules on ozone venting. You can read them here: accessdata.fda.gov/scripts/cdrh/cfdocs/cfcfr/cfrsearch.cfm?fr=801.415 ("Inhalation of ozone can cause sufficient irritation to the lungs to result in pulmonary edema"). The device seems unsafe from any way I look at it. No warnings or cautions. No mention of the amount of ozone vented. I had purchased the device and then returned it. The ozone runs through the device and right out the air inlet vent. So while they sell adapters to make it airtight, the basic design is flawed as the air runs right out through the CPAP inlet and into the room at a very very high level. Friends that I have that use it complained of headaches when they run it in their home. Another friend's wife said she developed a bad cough, did not know the cause, but then went on a short trip away from her husband who uses it, and the cough disappeared. I've seen information online talking about the risks and dangers of ozone so I am surprised this product is still on the market. Ozone is a dangerous gas to play with in a home around respiratory compromised patients, children and pets. Read the FDA warnings at 21 CFR 801.415. It's eye opening.

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When I asked my sleep therapist about this machine, she said do NOT use it - She said it would damage the CPAP.

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My first thought was that ozone and respiratory devices have no place together. But your comment raises a different point. SoClean runs ozone through the entire machine, going in through the humidifier, through the blower fan and air path, and out through the intake vent. Ozone weakens and shortens the life of most plastics and silicones and is also a corrosive. So I think your therapist is right. Using the machine likely damages the seals and gaskets in the CPAP and corrodes the electronics, shortening the life of the machine. Ozone might kill germs, but it also damages everything it comes in contact with, including a person's lungs.

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@lisalucier

@rickatl - welcome to Mayo Clinic Connect. Sounds like you've learned a lot in your experiences with your CPAP, and thanks for sharing this information on cleaning them and your thoughts on it getting you sick.

How is your sleep apnea at this point? Are the nasal pillows working well for you?

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My sleep apnea was categorized as mild to moderate, so certainly not as bad as some have it. It has been controlled very well with CPAP. I went from an average of something like 90-100 apnea episodes per night to an average of about 1 per night (based on the data the doctor extracts from the memory card at my check-ups).

I have tried a few different masks and for me, the nasal pillows work best. They are the only thing I can use that rarely ever results in soreness or a painful pressure point.

Also, about 8 or 9 months ago, I switched from the Respironics Nuance headgear to the newest type that has the main air tube at top of your head instead of the "elephant trunk" configuration. It's called the Respironics DreamWear. I think it's been one of the more significant improvements for comfort and convenience. The frame itself has air tubes built in the sides (but they are soft) and they bring air down from the main tube that's positioned above the head. You no longer have it in front of your face, so you can move around easily, change positions while sleeping. I love it.

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@cloe001

I read many cautioning articles regarding the So-clean & toxic ozone exposure. I am looking @ the 3B LUMIN CPAP cleaner that is ozone free & uses UV that sanitizes to 98+ germ removal. It retails at $249. Have any of you heard about it? Welcome advice. Thanks !

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Ozone breaks down very rapidly in an open environment. The ozone produced by the SoClean machine is contained in the system and there is a filter (replaced every 6 months) that helps ensure full breakdown. Even if there was leakage, the concentration of ozone produced by the machine is of dubious risk (unless perhaps you were pumping it directly into your respiratory system). That said, I never open the lid of my SoClean machine when it's running (generating ozone) or during the 2 hour period when the yellow light is on...just to be on the safe side!

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Do some research- OZONE IS TOXIC. I purchased the travel version of the SoClean about 3 months ago. The ozone generated by it (yes folks, 'activated oxygen' is ozone) has a strong smell. I cleaned my mask in the morning and by night time it still reeked, and so did my bedroom. Over this time I have been waking up more and more tired. Then I started reading about the toxicity and effects of ozone- it is a respiratory irritant.. Wow. I quit using the SoClean and within 3 days feel SO much better! I am going to get a UV cleaner. If you have a CPAP you already started out with a breathing problem- , think rwice before adding to them.

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I use Control III to clean the mask, and use approx 2-3 oz. of 91% Isopropyl Alcohol in the humidifier tank and run it dry. Should kill just about everything inside the CPAP?

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At the time that I began using my CPAP a little over 8 years ago, I asked one of the technicians about how I should sanitize the hose and the nose pillows. To the best of my knowledge, there were no sanitizing machines available at that time. The technician said that in his discussions with various users of the CPAP a few said that they use a good anti-bacterial mouthwash rinsed through the hose and to wash the reservoir once a week. I adopted this method and have used it for 8 years. I am pleased to say that I have had no nose, throat or respiratory problems or irritation to date. I find that one of the major advantages over vinegar cleansing is that there is no unpleasant odor.
1. I remove the hose
2. Fill it about half full with the anti-bacterial mouth wash
3. Swish the hose up and down a few times
4. Hang the hose to drain it and then replace it on the CPAP
Prognosis - Joined April, 2019

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I just purchased the SoClean unit. I have used it twice and today I find that I'm having lung congestion. Now, this might have absolutely nothing to do with the SoClean machine and more to do with the allergens floating around here in Arizona this time of year. But, it did make me scratch my head and wonder.

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Looks like lawyers are now involved in this. Saw an ad for a class action. Enough to warn me off. https://www.badozonecleaner.com/.

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