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Liver pre-transplant question

Transplants | Last Active: Aug 24, 2018 | Replies (127)

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@gaylea1

I have a question for people who take lactulose and rifaximin. They have suspended my driving licence because of these two drugs. I don't suffer from confusion or dizziness. Has anyone else had a problem of their licence being taken away? This is in Ontario.

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Replies to "I have a question for people who take lactulose and rifaximin. They have suspended my driving..."

@gayleaf1 I did not have a problem, but I know that varies in this country by the state you are in. I don't think it's being on those drugs, it's simply that you have had HE episodes. Some people have them come on quickly and you would not want to be driving if that happened. Thankfully, mine generally had a forewarning -- a sick feeling stomach, fatigue -- unless I woke up with one, which did happen just a few times. It sounds as if you could be driving still, but if you do and have an accident, I believe your insurance would not cover it.
JK

I too have questions "Is HE normally accompanied by grumpiness or some form of agitation & does it go away with the transplant?"

Post-transplant people in my support group report it goes away and a few are embarrassed by what they put their caregivers through.

@beckyjohnson HE absolutely goes away after you have a transplant. You then have a beautifully functioning liver, filtering out all of those toxins. It is truly a hallelujah moment.
Also, my HE was often accompanied by agitation, and belligerence.
JK