Reclast Infusions: Side-effects & Recovery time

Posted by cindydee @cindydee, Mar 20, 2018

I just had a reclast infusion last week and have had serious side effects. I had the worst flue like aching for 5 days then my lefty arm became full of inflammation in the wrist, elbow and shoulder which caused extreme pain and I lost the ability to straighten my elbow. Ultrasound showed huge amounts of fluid throughout the arm. The right arm is now starting to have the same symptoms. The pain is excruciating. Has anyone else experienced anything like this? Neither the ER doctor nor the Dr. who prescribed the procedure knew what to do to ease the symptoms. Both arms from fingertips to shoulder are swollen and neither elbow will straighten. Anyone else have adverse reactions to the reclast infusion? If yes, how long did it last?

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@sue225

@thornwood It would be so helpful if there was a doctor in this field who would address all of these questions all of us have or have heard about the quality of bone that these osteoporosis drugs create through altering the bone remodeling process. I need a research-based double-blind study kind of answer which does not seem accessible to any of us. All the standard websites including Mayo Clinic's do not answer these concerning questions. These are potent drugs . I have similar concerns regarding Prolia. On a phone apptmnt with my endocrinologist in response to a query I had, she replied that Prolia provides "a coating" . What the heck does that mean? Will pursue this at apptmnt next week for dexa scan and no.4 Prolia injection.😕

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@sue225 and others, I think you might find this brief article from Harvard Health to be helpful in describing the mechanisms of action related to the different classes of drugs used for bone health and management of osteoporosis.
https://www.health.harvard.edu/womens-health/what-do-you-know-about-prolia-and-reclast-for-osteoporosis

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@colleenyoung

@sue225 and others, I think you might find this brief article from Harvard Health to be helpful in describing the mechanisms of action related to the different classes of drugs used for bone health and management of osteoporosis.
https://www.health.harvard.edu/womens-health/what-do-you-know-about-prolia-and-reclast-for-osteoporosis

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Thanks Colleen. Think you must be a subscriber (which I may do).

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@sue225

Thanks Colleen. Think you must be a subscriber (which I may do).

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@sue225, I must've signed up to read Harvard Health a while back. I do not use the paid service, just the free option and have access to their articles.

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Will look at the link again. Perhaps I didnt read correctly. Thanks again.

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@sue225

@cl confirms my suspicions about Reclast. Sounds like it will cause even more trouble for me than the Prolia injections. I already have a lemon of a g.i. tract.

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And if your gut is in bad shape - that can be the reason your bones are in bad shape. My gut was in horrible shape five years ago. And my DEXA scan was -5.7. I have healed my gut - it's an ongoing process. I can't wait til I can get a new DEXA scan. I have no immune system, so my infectious disease doctor told me to wait - we are having an uptick in Covid19 cases where I live. I completely changed my diet and added key supplements - healed my gut (life is better now) and I've stopped fracturing.

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@sue225

I have osteoporosis because I have celiac disease and was misdiagnosed for many years.

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My diet is perfect for someone with celiac disease. That is a very painful disease to have and I'm sorry you were in that much pain for so long. It's enough to make you not want to eat anything.

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@sue225

@thornwood It would be so helpful if there was a doctor in this field who would address all of these questions all of us have or have heard about the quality of bone that these osteoporosis drugs create through altering the bone remodeling process. I need a research-based double-blind study kind of answer which does not seem accessible to any of us. All the standard websites including Mayo Clinic's do not answer these concerning questions. These are potent drugs . I have similar concerns regarding Prolia. On a phone apptmnt with my endocrinologist in response to a query I had, she replied that Prolia provides "a coating" . What the heck does that mean? Will pursue this at apptmnt next week for dexa scan and no.4 Prolia injection.😕

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The "coating" is dead bone. Nobody listens to me - but it is dead bone that doesn't leave the body when you are on these drugs. When you go off the drug, that "coating" leaves the body in your urine - as it would have done if you weren't taking those horrible drugs. Dead bone isn't going to help you at all - it just looks good on scans - it makes it look like your bones are getting bigger and stronger. I am going at this from a nutritional approach. I have stopped fracturing and will have a DEXA scan as soon as the Covid19 calms down. (I have no immune system and cannot risk a scan at this time.). About 99% of all doctors know absolutely nothing about nutrition. They only know about drugs and surgery.

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@parrotqueen

The "coating" is dead bone. Nobody listens to me - but it is dead bone that doesn't leave the body when you are on these drugs. When you go off the drug, that "coating" leaves the body in your urine - as it would have done if you weren't taking those horrible drugs. Dead bone isn't going to help you at all - it just looks good on scans - it makes it look like your bones are getting bigger and stronger. I am going at this from a nutritional approach. I have stopped fracturing and will have a DEXA scan as soon as the Covid19 calms down. (I have no immune system and cannot risk a scan at this time.). About 99% of all doctors know absolutely nothing about nutrition. They only know about drugs and surgery.

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@parrotqueen I am going to ask Dr. Specialist about the "coating" at my Wednesday a.m. appointment. Will report back.

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@parrotqueen

The "coating" is dead bone. Nobody listens to me - but it is dead bone that doesn't leave the body when you are on these drugs. When you go off the drug, that "coating" leaves the body in your urine - as it would have done if you weren't taking those horrible drugs. Dead bone isn't going to help you at all - it just looks good on scans - it makes it look like your bones are getting bigger and stronger. I am going at this from a nutritional approach. I have stopped fracturing and will have a DEXA scan as soon as the Covid19 calms down. (I have no immune system and cannot risk a scan at this time.). About 99% of all doctors know absolutely nothing about nutrition. They only know about drugs and surgery.

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@parrotqueen My PCP and I talked about what I should take My T-scire is 2 5 I told her about my girlfriend that was on Fosamex and had necrosis and the recast injection that almost sent her to the hospital so we decided on the Vit.Min way Waiting to hear about your Dexa scan Then my rheumatologist is badgering me to take something.I told her no I won't You are so right Dr,s aren,t taught about nutrition in med school

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@parrotqueen

And if your gut is in bad shape - that can be the reason your bones are in bad shape. My gut was in horrible shape five years ago. And my DEXA scan was -5.7. I have healed my gut - it's an ongoing process. I can't wait til I can get a new DEXA scan. I have no immune system, so my infectious disease doctor told me to wait - we are having an uptick in Covid19 cases where I live. I completely changed my diet and added key supplements - healed my gut (life is better now) and I've stopped fracturing.

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@parrotqueen The yeast problem in my mouth is cleared up Along with the mouthwash the Dr gave me I changed my diet and feel much better Thanks for your advice

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