@2011panc, Thanks for sharing your uplifting message of hope and faith. Your words are powerful. I hope you are doing well.
@dhelmstetter, I have never met anyony who carves alabaster! If you want some inspiration, I encourage you to the discussion > Art-for-Healing
https://connect.mayoclinic.org/discussion/art-for-healing/
It does get wordy, however if you scroll through you will be able to see pictures of art work that others have posted. Introduce yourself; share a picture; ask a question; make a comment - See you there?
@gaylea1, I struggled in my mind right along with you because I, too, had experienced a difficult pretransplant period several years earlier. Your words are so much appreciated.That is why I do what I do: I don't want anyone to ever feel alone while going thru an organ failure and a transplant. Thank you for what you are doing to support others - you are now an expert by experience.
@cehunt57, Thanks for filling me in on how your local providers amd Mayo are able to meet your needs. That is how medical care should happen - coordination plus communication with the patient's need in the forefront . Prayers as you continue your journey. Please keep us up to date, and stop in anywhere, anytime you want to chat.
@gingerw, Your husband is an amazing guy, but I guess you already know that! Such creativity and determination is admirable, and doubly so from my perspective as having been on dialysis for just a short while. How was it for you as a caregiver with kidney issues, to go thru all of this?
@rosemarya I guess I have a different kind of perspective. You see, I've been told my kidney disease will not let me have a transplant as it is autoimmune, so a transplanted organ would get the same issue as my native kidneys do. So I am under even more duress to make sure I keep healthy, and dialysis would be my endpoint. I always have been an information junky, so going through this transplant with my husband has been educational, and I have learned an awful lot! It helps me in being a mentor and being able to answer some questions from members.
Ginger