← Return to Transplant Evaluation - What to expect

Discussion

Transplant Evaluation - What to expect

Transplants | Last Active: Nov 28, 2020 | Replies (306)

Comment receiving replies
@rosemarya

@amlak
I would like to welcome you to Mayo Connect. I am happy that you have found us and joined us. Your information about your experience at Mayo Jax will be valuable to our members because we all learn so much from each other. Thank you for sharing your experience.
I invite you visit our other transplant discussion groups and to join in anywhere you want.
What kind of support was the most meaningful for you and your son after his transplant? Did you find any support once you returned home?
What organ did your son receive?
Rosemary

Jump to this post


Replies to "@amlak I would like to welcome you to Mayo Connect. I am happy that you have..."

Hello all,
Sorry , I am very late in replying but life take over.
My son received Liver Transplant in Dec. of 2010.
Yes, I read this regularly and will provide any and all information that I can here. I Jax Kristin and Steve who sort of manage the Support group there are the best and so is everyone else in Jax. Best of luck to all who are going through this life changing process and all I can say is have faith as this will happen and you will have a second chance.
My support post transplant , after we got back to NJ, for moral support, was connecting with group and as always Mayo was always available for all medical questions.
I have since moved to Rochester and will try to go to Gift of Life House here to offer what ever support and help I can to whoever needs it. If anyone who is at either of Gift of Life House want to talk, please feel free to reach out. I walk to St Mary's Hospital each afternoon for my daily walk and will stop by. My best to all. Aml

@amlak, No apology is needed - ever! We are happy that you are back. Life does have a way of making many turns and messing with our routines!
How is your son doing? That is the most important issue, in my opinion.
Do you mind telling us how old your son was at the time of his transplant?

I will return to this conversation. But right now the clock is ticking and I need to get off this computer.
Are you aware of today's event: https://connect.mayoclinic.org/webinar/video-qa-and-behind-the-scenes-liver-transplant/

Video Q&A and Behind-the-Scenes: Liver Transplant
Tue, Apr 24, 2018
12:00pm to 1:00pm CT

You will find me in the front row.
Rosemary

@amlak I am happy for you & your son's success story. How is he doing now? You are very kind to offer support for others that are about to travel that same path. I went through the pre-qualifying lung transplant tests in 2016 at JAX Mayo. I was terrified at the prospect of a double lung transplant. I went to several support group meetings at Mayo and met a room full of post transplant patients; many were long time survivors. Listening to their stories eaded my fears greatly.

@windwalker - Terri, It's a wonderful thing, when we have friends to journey with real and virtual. I have discovered a very strong supportive bond between all transplant patients. I think it is the hope and the courage that we gain from sharing our good times and our not-so-good times.
Hugs,
Rosemary

@amlak This is a very touching post. Thank you for spiritually (faith) uplifting some if not all of us who are followers on Mayo Connect Transplants.