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Transplant Evaluation - What to expect

Transplants | Last Active: Nov 28, 2020 | Replies (306)

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@dorifg

I am scheduled for my evaluation for kidney transplant at the Phoenix Mayo Clinic in May for 4 days and yes I am excited but scared too. I am not a fan of invasive tests and the thought of tests like a colonoscopy are freaking me out a little 🙂 I had a kidney/pancreas transplant in 1994 and after 22 years the kidney failed. The pancreas is still working so I am still taking immunosuppressants. This year I have also developed some gastroparesis so it has been a challenge to find food I can eat especially when I have no appetite. Some days I only have protein drinks and I have little energy due to low calorie intake. So I am also worried about fasting for a lot of these tests too. But I will do what I have to do and hopefully will get good results from all the tests.

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Replies to "I am scheduled for my evaluation for kidney transplant at the Phoenix Mayo Clinic in May..."

I am not familiar with Nepro, but I was able to eat foods while I was on dialysis. My potassium was always very low but it is more in the normal range now. Having to watch how much potassium I can have now would be hard because I am so use to eating foods high in potassium so I could stop taking the pills. When you said that you were drinking a protein drink I was hoping it was not one of those sports protein drinks. Have you lost a lot of weight or are you able to maintain your weight?

Does Nepro come in different flavors? I am not a chocolate person but I like Rich Chocolate Boost Plus, room temperature. Did your dietitian give you some suggestions on what to eat so you could get some needed calories along with drinking the Nepro? Hopefully, you will not have to back off on your Greek Yogurt for very long. After I had my ostomy surgery I devoured Greek Yogurt while I was in the hospital and the doctors were surprised how fast I healed because my diet was so limited. Once you have your surgery see if the Greek Yogurt works as well for you as it did for me. Good luck.

mlmcg

You are way ahead of me on all of this transplant stuff. I am hoping my sense of humor helps me out...
Just had an endo / colo. Worst part is the prep.
If its not fun Im not doing it!
If its really not fun...Im going to make it fun to get thru it !
That is what Im saying....
You will be fine...look how experienced you are...

@mlmcg Nepro comes in chocolate, vanilla, strawberry, and butter pecan. I prefer the vanilla and butter pecan. I have lost some weight but not too much. My dietician suggested adding some things to the shakes my husband makes me. Like peanut butter, honey, protein powder. We make them with vegan ice cream and coconut milk. Yum 🙂

Sounds good, especially the butter pecan. (I remember having butter pecan ice cream as a child when I visited my grandparents in the summer.) I found the vanilla Boost Plus too vanilla-ee and the strawberry just did not taste like strawberries to me. There was a time, well before dialysis, I had to drink shakes. I remember having ice cream, some orange juice concentrate, a banana, and some "egg-in-a-box" (that is what I call it - pasteurized eggs) I found it helpful as well as very good.

I lost more weight than I expected to when I had my ostomy surgery, I was almost skin and bones, but I did not want to gain my weight back too fast. I try to work my body every day, I do not do a work-out, just slow stretch moves all day long. I have gained some weight back but I gained more muscle and strength, which was what I wanted. May you maintain your strength and be healthy. Good luck.

mlmcg

@mlmcg That’s something I need to start doing, exercise. I have an exercise bike I’d like to start using again if I can figure out a time to do it. I work full time and by the time I get home I only have about an hour and a half before I have to hookup to dialysis (I do 10 hours every night) so I’m finished in time to get up in the morning for work. That time before hookup is spent feeding the dogs and trying to eat some dinner. So during the week it seems like my life is just work and dialysis. 

Do you have to be sitting down or in bed while you are on dialysis? I have a little peddle bike, not an exercise bike, and if you can sit in a chair while you are on dialysis you might be able to use a peddle bike to work your legs. Not knowing the type of work you do, if you are sitting at a desk all day you might be able to peddle away under your desk. If you have a job where you can walk, and if it is possible do not take the short cut to where you have to go, take the long way. If you have stairs, use them. I had a boss who's doctor said he had to walk for 30 minutes, 5 days a week. I know he would not do it by himself so I said that I would go with him. See if someone will walk 15-20 minutes at lunch with you, if you need someone to make sure you get out and about.

Do your dogs need to go for a walk? If you can only walk them on weekends they will be "happy campers" spending time out in the sunshine, if and when you have it, every weekend walking with you. If you can spend 5 minutes this Saturday and 10 minutes Sunday on your exercise bike, that is enough this week. Next week you can do the same or add another 5 minutes. Do not over do it until you are consuming more calories. Good luck.

mlmcg

Big help ...thanks ao much.

Speaking of exercise, there is a great discussion in the Health Living group called:
- Staying Motivated for the Long Haul https://connect.mayoclinic.org/discussion/staying-motivated-for-the-long-haul/

Several of the transplant members of Connect are taking part in this discussion. I invite you to join us there and get the chat and healthy living support going again. Exercise, drinking water and eating well are easier when you have people doing it with you.

@colleenyoung
Need to be involved in this. .Putting on weight like crazy. How many calories does Lactalose have? LOL
Evaluation is the week of June 11. Have tried many approaches and am hoping Mayo can help me.

@jeanne5009, I think that your transplant team will be able to give you some good weight control and healthy eating advice.

I invite you anytime to join us to Stay motivated as Colleen posted.
Rosemary