← Return to Transplant Evaluation - What to expect

Discussion

Transplant Evaluation - What to expect

Transplants | Last Active: Nov 28, 2020 | Replies (306)

Comment receiving replies
@bamagirlgina

@jodeej - Thanks for the information. Hopefully we will not have to stay the entire 3 weeks. I did contact Gabriel House today and right now the have availability...hopefully they will still tomorrow once I call about the appt. Trying to get an appt date at Mayo and Gabriel House in tandum is tricky. We considered taking our travel trailer over but the closest campground was at least 30 minutes drive away. Since Gabriel House has shuttle service that would be one less stressor to have to worry about (not to mention dragging the camper over, setting it up, etc.) Fingers crossed Mayo still has April 11 open when I call in the morning and that after that Gabriel House still has availability.

Jump to this post


Replies to "@jodeej - Thanks for the information. Hopefully we will not have to stay the entire 3..."

This is my first time posting a question so I'm unsure on where to begin. I have signed up to be a living kidney donor for a friend at the Mayo Phoenix Az. I have returned the HEPA forms and have not heard back from them. This process started in October, 2017 and I still have not been scheduled for further testing even though my bloodwork was acceptable. Is this a reasonable amount of time for this to be taking or is there something I should be doing to help this donor process along? Please reply with any advice you can offer. Thank you

@bjcjke. Things went really fast for me after my bloodwork. Could the hold up be on your friend's end? I don't mean that shehe is holding it up purposely, could there a delay for health reasons?
I would bug Mayo though. There are so many channels things go through, maybe you inadvertently got put on hold.

@bjcjke, I would like to welcome you to Mayo Clinic Connect. I am happy that you have joined this discussion. I am a recipient of a liver and a kidney from an anonymous deceased donor and my experience with living donation is limited to what our other members have shared about their experiences.
You have already met mauraacro and she has suggested that you contact the department in Phoenix. I agree that that is a good idea.

Are you familiar with the donor tool kit? Here is the Transplant Pages, with a tool kit that might be helpful.https://connect.mayoclinic.org/page/transplant/
Here is another resource: I Want to be a Living Donor - How Do I Start the Process?
https://connect.mayoclinic.org/newsfeed-post/i-want-to-be-a-living-donor-how-do-i-start-the-process/
I hope that you find out what is going on. Your willingness to step forward is an inspiration to all!
Hugs,
Rosemary

@bjcjke Do not worry about where to begin because you have already begun. There is another discussion thread under Transplants (Kidney) Journey From the Donors Side. I started the donor process in the beginning of May & joined Mayo Connect & immediately began following Journey From the Donors Side. I now also follow What To Expect & Changes After the Transplant. I have learned in spite of our very diverse Mayo Connect members we all have compassion which forces understanding (Even when disagreeing) in common. It takes courage to open up to a bunch of strangers. Thank you for sharing with us. It won't be long before you feel like part of the Mayo Connect family too. Yes you most definitly have to stay in contact with your coordinator to move forward. There is only one of them to 100s if not 1000s of us.

@bjcjke you are off to a good start already. As a potential living kidney donor I’m guessing you have already cleared the health history questionnaire or some other intake process, other forms and some initial blood work. Were you assigned a pre-transplant coordinator? That would be the person to contact regarding scheduling for the next steps of pre-transplant donor evaluation. @mauraacro made a good point about the possibility of delays. Mayo calls this “deferrals”. It can happen on either end, the recipient &/or donor. It simply means “not now, not yet”; such as more information/testing is needed; something needs to be treated, addressed, changed; the timing is not quite right ..... etc. Mayo makes sure that everything is optimal for everyone involved. Each patient is dealt with individually with his/her own care team. This is to customize your care, protect your privacy, avoid any conflicts of interest and so on. If there is a hold up of some sort on your friend’s end, Mayo won’t tell you (unless you’ve both signed authorization forms to the contrary). Contact your coordinator to get further explanation and answers. If you don’t have a coordinator, there should be living donor team contact info at Mayo Phoenix to point you in the right direction.