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MAC, Pseudomoas Aeuroginosa, Bronchiectasis

MAC & Bronchiectasis | Last Active: Apr 27, 2018 | Replies (28)

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@tamarrillo2
It sounds like you have really been through a lot.
I have had the pseudomonas infection frequently also. I had it in January and then checked sputum in February and it was still there. I did The tobramyacin nibs for two weeks each time. I think it's gone now though. I usually get it once or twice a year. I got it this last time when I came down with the flu.
Some times they will give you cipro with the toby nibs. I also have had the tobrabmyabcin iv's for it also.
I think since its everywhere in water its hard to avoid, I guess the trick is to keep it from colonizing.
Ate you doing three salt nibs also?
When I saw my pulmonologist two weeks ago he stressed that this was the most important thing to keep it from colonizing.
I am also doing two half hours a day of a vest clearance to clear my lungs.
Hoping some of this helps!
Shari

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Replies to "@tamarrillo2 It sounds like you have really been through a lot. I have had the pseudomonas..."

I'm also interested in saline nebs and would be grateful for info. I was diagnosed with bronchiectasis about 8 years ago, after having a lot of CT scans as part of followup for 2 malignancies. Chest CTs showed pulmonary nodules and tree-in-bud. After nonstop coughing last year, I had super D electromagnetic navigation bronchoscopy at UCLA in April 2018 (pretty amazing procedure); they biopsied nodule (not malignant, yay) and did about 20cultures which showed 3 bacteria in lung--MAC, strep and another. A year ago I was incidentally at a place in austria where they had saline chamber and salt sauna. I felt great afterward.