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MAC, Pseudomoas Aeuroginosa, Bronchiectasis
MAC & Bronchiectasis | Last Active: Apr 27, 2018 | Replies (28)Comment receiving replies
@tamarrillo2
It sounds like you have really been through a lot.
I have had the pseudomonas infection frequently also. I had it in January and then checked sputum in February and it was still there. I did The tobramyacin nibs for two weeks each time. I think it's gone now though. I usually get it once or twice a year. I got it this last time when I came down with the flu.
Some times they will give you cipro with the toby nibs. I also have had the tobrabmyabcin iv's for it also.
I think since its everywhere in water its hard to avoid, I guess the trick is to keep it from colonizing.
Ate you doing three salt nibs also?
When I saw my pulmonologist two weeks ago he stressed that this was the most important thing to keep it from colonizing.
I am also doing two half hours a day of a vest clearance to clear my lungs.
Hoping some of this helps!
Shari
Replies to "@tamarrillo2 It sounds like you have really been through a lot. I have had the pseudomonas..."
@tamarrillo2 My condolensces to you & your family, Tammy.
Thank you. 🙂
I haven't been on this thread in awhile. I would like to know what the Tobramycin nibs are and also the salt nibs. Thank you.
Thank you.
It’s actually nebs which means nebulized. The Tobramycin is a nebulized antibiotic. The other one is nebulized saline. I haven’t tried either one yet.
Thank you!
Tamarrillo2....condolences over sister in law unexpected death.
Am writing this to comment re use of steroids /prednisone for back and rib pain. Had he suggested going to PT. Steroids are miracle drugs....but the side effects even with short term use are numerous. Tdrell
Thank you! I’m off the steroids now. I’m definitely aware of the steroid side effects. I can’t take anti inflammatory drugs so usually end up with short burst of steroids. I had spine. Had more X-rays and turns out I have multiple compression fractures likely due to my having Osteoporosis which will be treated now. I will also request physical therapy.
I just spent a week in the hospital due to the flu. I get the flu shot and wear a mask everywhere so not sure how I got it. While in hospital, I was coughing hard and felt something happen in low abdomen. Doctors thought I pulled a muscle but pain increased & cat Scan done. I had a blood vessel burst & pint of blood bled into muscle and caused hematoma and caused muscle to separate/tear. Pretty painful. Home now and recovering thankfully.
@tamarrillo2 Hello Tammy. How are you doing? I was wondering if you got started on the saline nebs? Did your doctor put you on the tobramycin yet?
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@tamarrillo2
So very sorry for your loss.
Please take care
Shari