Hi Justin,
I have been thinking that maybe I should get another opinion at Mayo because the hematologists I have been seeing in my area seem to have no answers. I was treated very rudely & felt like I was being dismissed after my last appointment. I did not want to go back to that doctor or have any part of the medical system I had been in for more than 2 years. I don't have high hemoglobin numbers but just the hematocrit. I had so many phlebotomies that I was borderline anemic. Now I'm on iron pills but the problem of the red cells is still there & the numbers are going up slowly. I go to my primary Doctor for blood panels. My main symptoms are constant & many times extreme itching, upper body and arms, neck, back, scalp and lately, lower legs, torso gets extremely hot with sticky skin under breast area. Worse at night and not sure if the idiopathic neuropathy in feet is connected to this. Also have painful wrists and hands from longtime carpal tunnel syndrome. I had a bone marrow biopsy in March/16 to check for Polycythemia Vera but came back Negative for Jak 2 mutation. I'm really discouraged some days. I will have blood hematocrit & iron checked again in April at my primary Dr's office. Thanks for any help you can provide.