Hello @nancgdav, welcome to Connect. I know it must be difficult when you aren't able to get a diagnosis and treatments that help.
There is another discussion that you may want to read through here:

> Groups > Brain & Nervous System > Benign Muscular Fasciculation
— https://connect.mayoclinic.org/discussion/benign-muscular-fasciculation/

@jenniferhunter had the following post in the discussion where she shared some information that I think may be helpful for you.
— https://connect.mayoclinic.org/discussion/benign-muscular-fasciculation/?pg=1#comment-279251

@mdemo posted a similar question in a new discussion so may be able to share experiences and symptoms with you and @amtxo1989 here.