← Return to Thyroid? Or something else? Constant internal shakiness

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@jsrbr

I think this is what I have as well. Mine happens at night and wakes me up with this strange shaking feeling inside my body. I first noticed it in my chest so thought I was having SVTs or something (I have Graves). But in the past few weeks it has moved into my head and neck. It makes me very anxious, can cause dizziness and also like I want to get up and move around to make it go away. I cannot sleep a normal night anymore they have gotten so bad. I see an endocrinologist so hoping she has some answers. Doe anyone also consult a functional medicine doctor for their auto-immune disease? I am currently seeking one that has experience in Graves and would appreciate any info. Thank you.

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Replies to "I think this is what I have as well. Mine happens at night and wakes me..."

I used to have the horrid night sweats and heart palpitations too. I take a heart regulating med called Metoprolol. I had the tilt table test at Mayo and they said I had POTS (Postural Orthostatic Tachychardia Syndrome) meaning when I adjust posturally my heart rate changes. I had the dizziness to the point where I would actually have to catch myself to keep from falling as well. Ever since I have been on the med I haven't had any issues at all. My night sweats stopped when I got on a good dose of Thyroid medication. It is a good sign for me to pay attention to because if it starts again I know my meds are off and to go see my Endocrinologist to check my levels. A random doctor that wasn't even mine stopped to look at my chart one day and asked if I had been tested for Graves. That sent me to an Endocrinologist (The only specialty I had not seen) and he ran the specific blood tests for Graves, Addisons, and Hashimoto's. I swear when I went back for the results and he said I 100% had Hashimoto's I stood up right there and did the dance of joy that I had a disease! Because it turns out I wasn't imagining things or faking symptoms. It finally had a name and if it had a name I could do something about it before it killed me. A regular thyroid level will not show you whether you have it or not. You have to test specifically for those three things. SO see an Endocrinologist and when you make the appt ask if they specialize in Graves or Hashimoto's. It makes a difference. If you have it you will start on meds that will take a little adjusting to get a good level to control everything that is happening but I swear there is an end game!.I can go outside in the daytime without dying in minutes from heat intolerance. I can work a part time job now instead of being home bound. I sleep an entire night through without waking up. I haven't fallen or had a significant dizzy spell in almost 2 years. My heart palpitations have stopped completely.Removing the thyroid is NOT for everyone. If you have HD it can be managed with medication. Mine had just been undiagnosed and active for 7 1/2 years so there was just too much damage to almost everything inside my body for me to be able to manage it with just meds. I wish you luck! I don't hope that you have HD but I hope that you have HD, (You understand that. ) Most people do not know this but your Thyroid LITERALLY tells every cell in your body what to do so when it is broken everything goes haywire in your body. If it gets to the point of removal I can point you to the best doctor at Mayo in Jacksonville, Florida, to do it. He has done more than 2500 Thyroidectomy's and is the chair of the department. I went to the top guy and I am so glad that I did. It could not have turned out to have a better result for me. First step you have to go see an Endocrinologist to have the blood test. The results can literally change your life.

I have Hashimoto's although i do not take any medication for it, don't need it yet, check to see if you might have nodules in your thyroid because i suffer with those shakiness feelings and have many nodules and when they shed hormones makes me very hyper and with those feelings, i am having a FNA to see if they are benign or not

Hi, I'm just wondering you ever got a diagnosis? I am experiencing the exact same thing, internal tremors when I'm sleeping, only in my trunk and head. I don't feel them in my limbs. I also feel the need to get up and move around and this definitely helps.

No one can figure out what's wrong . All my blood work is fine, and indicate no thyroid issues but am in Peri menopause. Started estrogen and progesterone but hasn't helped.

I'm starting to worry about MS or Parkinsons but apparently I don't have any of the other symptoms.

It's all very frustrating and scary.