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Long-term Antibiotics for Bronchiectasis & MAC
MAC & Bronchiectasis | Last Active: Aug 14, 2020 | Replies (164)Comment receiving replies
@pejohnston , Hello, and welcome to the Connect community. Do you have a a first name that you would like to use? To answer your question about long term antibiotics; you will see that many of our members are on a long term regimine. Most that are taking antibiotics are taking the 'Big 3' cocktail. People usually are on them anywhere from 18 months to 3 years. I am on a different kind of ongoing regimine. I have been taking alternating singular antibiotics on alternating months. I have been doing this since 2013. It is known as a prophylactic approach. My doctor explained that he liked this approach because it is more tolerable for the organs and prevents the mac from becoming resistant to the antibiotics.
Replies to "@pejohnston , Hello, and welcome to the Connect community. Do you have a a first name..."
@megan123 Thanks so much. Especially for the Drs names. Can I message you privately? I don't really know where to gind that feature on here. But someone sent me a private message. I just don't know how.
Not sure..
Hopefully will go through
Jen
Hi Jen and Laurie,
I removed your personal email addresses. Connect is a public site, so I don’t want you to get unwanted spam.
To private message:
1. Click on the name of the member you want to private message. This will take you to their profile.
2. Click the envelope icon.
3. Write your message and send.
@colleenyoung thank you
@lauriefrancis , Hi Laurie. I am sure you are feeling aggrevated while dealing with bureaucracy in the Canadian health care sysrem. You may want to look into traveling to the U.S. and bringing her to the Mayo Clinic. People worldwide come to their clinics because they are known for their Gold Standard care. They have an International relations office that can help you with insurance, etc. They work with you as far as payment goes if you have to pay out of pocket. They are a non-profit research hospital. If you want to send your mom down to the Jacksonville, Florida clinic, I'd be happy to meet her there and get her to her appointments, etc. Rochester, Minnesota may be closer for you. They have a clinic there, and also in Phoenix. Their websites are easy to get around in and find the International intake office. Let me know if you need or want help with that.
You're very welcome, Laurie. I'm glad that I was able to connect you with fellow Canadians.
While some information is better shared by private message, I would also like to remind everyone of the benefit of sharing in the forum. By posting in the discussions in the MAC group you benefit from the knowledge and experience of many. In fact it was by sharing in the group that I was able to connect you with other Canadians. That's the beauty of online communities like this one. 🙂
@colleenyoung yes I do appreciate that very much. I will keep that in mind.
@lauriefrancis Hi. Just checking in. Did your mom's doctors figure out what was causing her stomache issues?
@irene5 Hi Irene! Have you been able to gain back SOME weight at all? Do you feel like you are doing any better?
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@megan123 Thanks so much. Especially for the names of the Toronto Drs. Can I private message you?