Extreme fatigue with MAC

NIH is a federal government agency, whose charge is biomedical & public health research. In general, it sponsors studies done in other venues, or collects and analyzes data from studies, journals and reports. NIH is not (as far as I know) doing primary patient care, but through your physician you may be a participant in one of their studies. I look to NIH as a source for scientifically vetted information. Perhaps the previous poster was referring to "NJH," short for National Jewish Health, which is a big & well-respected provider of care for lung ailments, does a lot of research on the issues, and hosts an annual(?) conference on Bronchiectasis and related infections.

@migizii, sorry to hear you're having some challenges with navigating Connect. You can find helpful tips on how to use Connect here: https://connect.mayoclinic.org/get-started-on-connect/ Or write to us using this form https://connect.mayoclinic.org/contact-a-community-moderator/ I'm happy to help you get things figured out.

Migizii, it sounds like the fatigue you experience is unpredictable. Is that true or have you found patterns to the fatigue that make it easier to manage?

Thanks for your response, however it didn’t show up on my email account....sometimes they do and sometimes they don’t, even though I am “following” the group.” My fatigue is unpredictable and I do get good sleep. It’s frustrating especially as I’m still working full time.....I know if I don’t get enough sleep, the next day is extremely challenging. Also, I have to make sure I eat regularly and keep a balanced diet to ward off fatigue. I need to find some kind of exercise that is more consistent and enjoyable. I broke my foot, and it is now in the rebuilding stage so it’s still sore-making exercise uncomfortable (unless I’m in a therapy pool, but I don’t have access right now due to my work hours). I’m hoping to get some access next month🤞Thanks again for thinking of me.....I will also try doing a hard off on my tablet and then restart. Perhaps that will help!

Thanks for your response, however it didn’t show up on my email account....sometimes they do and sometimes they don’t, even though I am “following” the group.” My fatigue is unpredictable and I do get good sleep. It’s frustrating especially as I’m still working full time.....I know if I don’t get enough sleep, the next day is extremely challenging. Also, I have to make sure I eat regularly and keep a balanced diet to ward off fatigue. I need to find some kind of exercise that is more consistent and enjoyable. I broke my foot, and it is now in the rebuilding stage so it’s still sore-making exercise uncomfortable (unless I’m in a therapy pool, but I don’t have access right now due to my work hours). I’m hoping to get some access next month🤞Thanks again for thinking of me.....I will also try doing a hard off on my tablet and then restart. Perhaps that will help!

Would you ever push for Cleveland Clinic? I am at the University of Michigan but could be old school.

I seem to be having some trouble navigating the bronchiectasis site lately, but wanted to share that I have been diagnosed for about three years and have not had MAC or NTM infections. I have had a couple illnesses that I became more sick than most people and required short antibiotic interventions. However, fatigue has been an issue that has overridden my life since this illness has taken hold of my life. It just happens to wax and wane in whatever nature it feels like taking......I concentrate on keeping everything as regular as I can-eating, sleeping, exercising (very lightly or I get exhausted).....and I try to keep doing my twice daily treatments as regular as possible.....I am grateful for my “new normal” and all of you as you give me so many wonderful ideas and support!

Thanks for your response, however it didn’t show up on my email account....sometimes they do and sometimes they don’t, even though I am “following” the group.” My fatigue is unpredictable and I do get good sleep. It’s frustrating especially as I’m still working full time.....I know if I don’t get enough sleep, the next day is extremely challenging. Also, I have to make sure I eat regularly and keep a balanced diet to ward off fatigue. I need to find some kind of exercise that is more consistent and enjoyable. I broke my foot, and it is now in the rebuilding stage so it’s still sore-making exercise uncomfortable (unless I’m in a therapy pool, but I don’t have access right now due to my work hours). I’m hoping to get some access next month🤞Thanks again for thinking of me.....I will also try doing a hard off on my tablet and then restart. Perhaps that will help!

What is NTM? I want to know the whole words. Thanks.

I seem to be having some trouble navigating the bronchiectasis site lately, but wanted to share that I have been diagnosed for about three years and have not had MAC or NTM infections. I have had a couple illnesses that I became more sick than most people and required short antibiotic interventions. However, fatigue has been an issue that has overridden my life since this illness has taken hold of my life. It just happens to wax and wane in whatever nature it feels like taking......I concentrate on keeping everything as regular as I can-eating, sleeping, exercising (very lightly or I get exhausted).....and I try to keep doing my twice daily treatments as regular as possible.....I am grateful for my “new normal” and all of you as you give me so many wonderful ideas and support!