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Multiple abnormal hormone levels - Could it be autoimmune related?
Autoimmune Diseases | Last Active: Mar 24, 2018 | Replies (28)Comment receiving replies
did they do various imaging scans of your body to rule out ectopic tumors? Also how was the endos at Mayo Clinic Minnesota? Thinking of going there for Cushiing Syndrome since I have a very rare case of exogenous even though I stopped medication (eye drops) two years ago.
Replies to "did they do various imaging scans of your body to rule out ectopic tumors? Also how..."
Thanks, appreciate the response. If you do not mind, how much did it cost you to attend Mayo Clinic? Thing is I am 24 years old and my health insurance although PPO, is out of network at Mayo. The insurance carrier is known to be stingy with out of network providers, so I think it would basically be self-insured for me (unless I find employment opportunities at Mayo).
The costs of the doctors visits were really no different that what I am being charged locally. However, there is really no way to say what the cost would be since there is so much variation on what each patient would need testing wise. I will say this the scheduling is wonderful, and I was able to accomplish more in a week at Mayo, it would have taken me MONTHS to have gotten it done locally and some of testing I would have had to went to Mayo as it is not available locally for me.
If you don't mind my asking, what eyedrops were you using? I have used Restasis for over 5 years, and have wondered about side effects long-term. I also have or had Cushing's syndrome, but mine was due to adrenal tumor, which was removed last October, but still have Cushing's symptoms.
restasis cannot give you cushing since it is not a corticosteroid, although I heard cyclosporine can give you high blood pressure. I used corticosteroid eye drops like lotemax and durezol. Have you since tested for a 24 hour urine cortisol free test to see if you still have elevated cortisol? How is your blood pressure? Puffy face? Constipation? Verbal/ speech cognitive problems?
Dave, the answer to all of your questions is YES. What do you think that means? Look forward to hearing from you.
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I was followed by a endocrinologist in the pituitary area at Mayo in MN from 2012 till he retired in 2015 (after being at Mayo over 40 years) My experience working with him was wonderful. His approach was I am not sure what is going on with me, but we will keep track of your symptoms and test as needed, and this will show its self at some point.
However, when he retired my experience has been less than satisfactory from the pituitary area of the endocrinology department.
Even with that being said I would still encourage anyone who has not been there and feels they need to go, to please go because if you are to the point you feel you need to go to Mayo, it will probably be of some help.