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Anyone Caring For Someone who Uses A Feeding Tube?

Caregivers | Last Active: Jan 27, 2020 | Replies (38)

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@walisky

Hi. My husband's feeding tube balloon deflates about every 3 months and we have to go to the emergency room to have a new feeding tube put in. Any experience with this? Haven't heard from anyone else who is having this happen. Thanks.

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Replies to "Hi. My husband's feeding tube balloon deflates about every 3 months and we have to go..."

@walisky Hello and welcome to MayoClinicConnect. Here at Connect, we help support and help each other. Have you mentioned this problem with the tube deflating to your husbands doctor? Is your husband seeing a gastroenterologist? Usually these specialists have a specialized nurse who is able to help with feeding tubes. Why don’t you give the office a call to see what they might suggest? Have you already learned how to care for and manage the tube and the stoma? Gee, that’s a lot of questions! See what you can find out in the next day or so. You can also go to the wound and ostomy nurses website. They have a function to help you locate a specialized nurse near you. http://www.wocn.org Let us know how you do! This isn’t an overnight fix, but it will give you some future resources

@walisky Have you been able to get more education re: the feeding tube? If so, can you tell us about it since it might help others?

My sister is experiencing a similar proble. She is using the Halyard g-j tune with an air filled balloon. Have you had any success?

If it's a gtube you can change it yourself at home. My son had a gtube for 25 years and life got so much easier when we did tube changes at home. Not for gj tube