Watching a Meningioma Brain Tumor

FYI: Oct 26 to Nov. 2, 2019 is International Brain Tumour Awareness Week!
Meningionas is the most common brain tumour - 37% of all tumours, benign & malignant are meningioma

colleen - how can my message be shared with others on this post

@gloriajean, your message about Brain Tumor Awareness week Oct 26 to Nov 2 was shared with all members participating in this discussion and all members following the Brain Tumor group.

Are you doing anything special for brain tumor awareness?

I have a 1.2 cm meniginoma . I have been having tingling sensation to my forehead and right eye area. I have been told this is pressing on the trigeminal nerve. Does anyone have these symptoms? Trying to find a medication that with relieve these symptoms. I am watching and waiting to see if grows, surgery sounds scary due to location near carotid , brain stem.

Hi, @cyndymc - I'd like to tag @jill333 @donald1214 @gloriajean @robinem so they can share some of their experiences with meningioma as well as whether they may have had a tingling sensation in the forehead and right eye area.

Is surgery being recommended for you at this time, or is the doctor also thinking watching and waiting is best? Did your neurologist have any medication to offer to alleviate the symptoms?

Hi, @lisalucier! I’m tagging @jill333 @gloriajean @robinem. I’ve only seen one NS about my M, and he has since discontinued seeing brain patients. I’ll be seeing a new NS in April. I’ll be having a new CAT scan with and without contrast in February or March for that visit to see if the M has grown/changed. I can’t have MRI due to pacemaker. No tingling sensation in forehead or right eye area. Am seeing movement disorder neurologist for myoclonus. She took me off primidone and and put me on propranolol for tremors. So far, so good. Still on keppra until after myoclonus is cleared up, then she’ll wean me off that. I’m not convinced that there’s no connection between the myoclonus and the M, though. Myoclonus symptoms are coming back.

I also have a meningioma that is 2.4 cm since last scan in October. I am having the same symptoms as you but also balance problems and numbness in feet. Doctor recommended Gabapentin but don't want to take it. My NS says the tingling numbness in forehead, eye and now lip is not connected to the meningioma. He is suggesting the watch and wait, too. I have another MRI in January. Good luck to you.

I have been diagnosed in 2018 with meningioma 12 mm on my right front brain. They gave me antibiotics for 10 days. I had again a MRI 3 months ago and was told that this meningioma is now 8 mm but I have an other one below of 4 mm. They advise me to wait and see. I don't have any motor sign but losing some of my vision. Do I have to wait?

Hello, @ginette55 - welcome to Mayo Clinic Connect. I'd wonder, too, if I were watching and waiting with 2 meningiomas and I started losing vision.

If like to tag @deblee @cyndymc @donald1214 @robinem to provide some support and any input they may have at this time about continuing to watch and wait with the vision loss you've experienced

Have you had the opportunity to talk with your doctor about the changes in your vision? If so, what did he or she say?

Not yet. But I am expecting a new appointment.