Is chronic reactivated EBV different from chronic active EBV?

I looked up her protocol and it’s basically the same recommendations as Anthony William from cleanse to heal

hello everybody! please go to this website to get started. she is the real deal. I am not a bot or sponsored. I am a 29 year old woman whom has suffered from CAEBV since I was 14. i had mono when I was 11 and had my first reactivation when I was 14 before I started my first period. There is hope! You are not alone. I don't typically post on message boards but I made an account in order to post this link. Godspeed.

Okay it will not let me post a link, but please google Dr. Kasia Kines and "EBV Global Institute."

Dr. Kasia Kines, EBV Global Institute

Yes I’ve watched her webinars and she’s using Anthony Williams protocol for EBV. I signed up for her webinar and she referenced him constantly. I was really disappointed because I had the impression she had something different, but she didn’t. Basically folks look up Anthony William and he talks about Monolaurin, cat claw, lemon balm, lysine, and much more. He recommends no fat, diary, sugar diet and 28 days of raw fruits and vegetables to really hit it on the head. It has really helped me. It’s a liver detox for sure.

Thank you! These responses have been helpful! I've been trying to think through again some of the timing of health and autoimmune issues. I have an appointment with Infectious Disease next month. I don't know if I will ever pinpoint when EBV first entered my system. I had ITP at age 10. I had the full-blown case of mono the next year (the month before starting my first period).

I've been finding some research papers connecting EBV antibody spikes to periods of high stress and to ACEs (adverse childhood experiences):
[ "Childhood adversity and cell-mediated immunity in young adulthood: Does type and timing matter?" https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4180230/pdf/nihms599700.pdf%5D

I have built up some stamina over the past four months for brisk walks 2 to 3x a week, but I definitely have to pace activity. If I take a walk, that's all the energy I had for the day. It's strange that a walk can feel okay, but then I get winded carrying a laundry basket up a flight of stairs. I've been taking a good multivitamin and 2000 IU of Vitamin D, and just added in 200 mg of magnesium glycinate each night. I am trying to keep up with a good diet. I skip meals sometimes because of being too tired to make something.

Does anyone have thoughts on "long haulers" coming out of the COVID-19 pandemic? I am finding many similarities to chronic EBV from other communities regarding post-viral fatigue.
https://www.cbsnews.com/news/covid-long-haulers-60-minutes-2020-11-22/
(YouTube video link of this story: https://youtu.be/0gLmMPOHDwM)
https://www.healthrising.org/blog/2020/08/05/chronic-fatigue-syndrome-resources-support-long-haulers/

@curiousr regarding long haulers, it is my opinion that they are nothing new. I am basically a long hauler from a bad case of mono that led to ME/CFS. I am thankful that there is attention being focused on those who never recover fully from viruses or other stressors. Not only as someone who has dealt with this, but as an RN I know that conventional medicine is not educated about this and even worse, they treat these patients poorly.

To help educate and bring light to this complicated and misunderstood disease, I had an article published in a few professional nursing journals about ME/CFS. It was timely due to Covid and long-haulers. Here is a link. https://journals.lww.com/nursingmanagement/Fulltext/2020/10000/Chronic_fatigue_syndrome.4.aspx

Feel free to share with your healthcare provider. (I am not sure how long it will be available online for free, but you can print it.)

Basically, CFS is triggered by a stressor. That stressor can be a virus, environmental stressors, emotional stressors such as divorce, surgery, and the list goes on. It is as if the brain senses a threat but never goes back to a normal calm state. It continues to function in stress mode. When this happens, it affects our immune system, digestive system, our neurological system, and the way our body makes energy.

Imagine a school. Teachers are teaching. Children are learning. The cafeteria workers are making lunch. The nurse is tending to those that are ill. Then, The fire alarm sounds! Everyone leaves the building. everything stops. The firemen come and take care of the small oven fire in the kitchen. Everyone is allowed back in the building and things get back to normal.
However, if for some reason they do not get the all clear signal, no one goes back to their duties. Teachers aren’t teaching. Students aren’t learning. Lunch is not being made. According to the research I have done, this is what happens leads to many of the mysterious illnesses such as CFS, chronic Lyme, recurrent EBV, and multiple chemical sensitivities.

Those are my thoughts on long haulers. Nothing new. But definitely more attention, research dollars, and compassion for its victims are desperately needed.

Know that you are not alone. You are doing the right thing by reaching out. May you find the insight you need so you can get your life back. Believe that you will get well. Keep searching. Don’t give up. I wish you all the best on your healing journey!

Here are 2 things that were pivotal in my recovery.
1. Dr Rodger Murphree (yourfibrodoctor.com)
2. DNRS (retrainingthebrain.com)

Marianne Bush

I’ve also just been referred to an infectious disease specialist. I had two mono positive results in one year. I just started walking again but am doing everything slowly and in increments so I don’t get overly tired. Also managing all stress! I too believe that stress brought this all on, and it’s stress management that will keep it away. I’ve been following the Anthony William protocol and find I feel much better when I do versus eating lots of grains, fats etc. Its an ongoing challenge as we all here know. I’m very happy and grateful to have found this community. I’ve been messaging off and on for a year now. Blessings and patience to you all 🙏🏻

@suewilliams64 Excellent advice!! Blessings to you as well.

Sue Thank You for the Excellent advice!
Blessing,
From The LAnd of Enchantment!
Sundance(RB)