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@mrmie

Hi @diggydo27. I'm sorry you are feeling so poorly. I have dealt with recurring EBV and chronic fatigue. I'm glad your doctor recognized recurrent EBV. Some doctors don't. I cannot diagnose or treat, but I'd be happy to answer some of your questions and share some information I have learned. For more information on interpreting EBV lab results, I recommend https://ebvhelp.com/labs-diagnosis/ . Your ADHD symptoms are common in those with chronic fatigue syndrome and fibromyalgia. Sometimes it is referred to as "brain fog." There is also a theory that EBV can affect the vagus nerve which can cause some GI symptoms. There is a high percentage of people with EBV, CFS, or fibromyalgia that have GI complaints, leaky guy, SIBO. Most of our immune systems are in our gut, hence the connection. As far as your question about other doctors you should see -- I would definitely keep your primary care doc informed on your condition and see GI as already recommended. I have found that most people dealing with this type of illness have better luck with an Integrated Medicine doctor, functional medicine doctor, or a naturopath. If you'd like to understand more about EBV, please feel free to check out the March post on my wellness blog at http://www.BackToLifeWellness.com. I share info on EBV from the unique perspective of the virus itself and intertwine part of my story. At the end of the post are several links that may be helpful. (I do not make money off my blog. There are no ads. It's there simply to educate the public on wellness topics :)) Oh, one more thing. You mentioned you have migrating pain. Have you been checked for Lyme disease? A good resource on that is Dr. Bill Rawls, MD (RawlsMD.com). I wish you answers and healing soon!! ....... ~Marianne~

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Replies to "Hi @diggydo27. I'm sorry you are feeling so poorly. I have dealt with recurring EBV and..."

Thanks @mrmie ! I was actually tested for Lyme as part of my massive panel and it was negative. The only other items that came up were slightly elevated Calcium and Albumin (by slightly I mean .1 over the range). I did find an article that reactive arthritis can be caused by an infection in another part of your body (most often your intestines, genitals or urinary tract) but I'm not sure if this is a stretch (arthritis is in my family history). Thanks for the links, I'll take a look!