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Is chronic reactivated EBV different from chronic active EBV?
Infectious Diseases | Last Active: Oct 9 4:22am | Replies (221)Comment receiving replies
I wonder how many people here are still working full time jobs? Stress is a HUGE factor in the recovery. I haven't worked since a year before my diagnosis because I couldn't!. I have several other medical issues that accompany my Reactivated EBV. It is getting slowly better, as I try to limit stress and emotional turmoil. If someone is overly demanding of me, I have to back away from them. I think I am not alone in this. I think most of us are Susceptible to this because of our caregiving nature. I would live to hear others' experience.
Replies to "I wonder how many people here are still working full time jobs? Stress is a HUGE..."
Hi @luannkelly. I'm sorry you are going through this. I pushed myself for a year continuing to work full time and then had a relapse on a relapse and couldn't even sit up long enough to work so I had to quit my job in 2017. It has been a roller coaster ride since, but am working with a doctor now who had specialized in CFS/Fibromyalgia for 20 years. I am seeing improvements. You are right -- stress makes it worse (good or bad stress) and you are NOT alone. You can read more about EBV and some of my story in the March post of my wellness blog. http://www.BackToLifeWellness.blogspot.com
I list several helpful links at the bottom of the article. I try to stay positive. Even though this illness has taken so much, it has also brought many of my blessings to light. I look at life differently. I wish you the best on this healing journey!........Marianne
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@luannkelly , I have apparently had EBV issues since I was a baby. I have always had "bouts" of the stuff, but doctors always looked at me like I was a hypochondriac. I wasn't diagnosed until January of 2019! And it was REALLY BAD by then. Stress is definitely a factor...I am taking care of my parents and my dad is bedridden. Makes it super hard. Thankfully I am retired now, but it is often harder than my old career. Working a career with the stuff was hard, especially when MDs and ODs just look at you funny! I put up with that for over 40 years! My personal opinion: MDs and ODs need to test everyone to see if they have chronic issues. You will find by reading the Kasia Kines book on EBV that EBV is the basis for many, many, many diseases that are treated with other methods that are inappropriate for EBV and often makes things worse, like the antivirals!