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Is chronic reactivated EBV different from chronic active EBV?

Infectious Diseases | Last Active: Oct 9 4:22am | Replies (221)
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@mrmie

@swingerofbirch That would be frustrating not being able to talk with your doctor. Your bloodwork indicates that there might be a reactivation of the Epstein-Barr virus since the IgM is positive. Checkout https://ebvhelp.com/labs-diagnosis/ for more info. The pharmacist flagged the Valtrex prescription because it is an odd dose. It comes in a 500 mg and 1000 mg tablets. I'm wondering if your psychiatrist meant grams not milligrams. The psychiatrist is practicing bad medicine if her office does not contact you and explain why she has ordered a new medication! In my personal experience and what I have heard from others, infectious disease is not very helpful. I'm not saying that to discourage you from seeing infectious disease, I just want you to be prepared. Most people with reactivated EBV have better luck with a functional medicine doctor or naturopath.
Again, you can check out EBV.com for more info. I wish you the best in wellness, Marianne

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swingerofbirch | @swingerofbirch | Feb 10, 2019

Thank you very much.

That site was helpful and also led to some other sources.

My doctor prescribed 4 grams (4,000 mg). She's known to do very unconventional things (like having me tested to begin with—I was only tested because she seems to be testing all her patients).

I kind of figured infectious disease might not see me. When I called they said they normally see people with HIV and hadn't heard of an EBV case, but my doctor (PCP) is trying to get me in now. He hasn't been too helpful. I've sent him the tables that show how you interpret the results and how I don't exactly fit into any of them, and the only response from the nurse is that he doesn't know about the tests. I sort of rely on him to help me out because again the psychiatrist is both difficult and "out there." She'll say things with complete certainty that are obviously not true but if you question her for a source for example she'll get very defensive. And I need to keep seeing her for my psych meds because it's very hard to get in to any psychiatrist where I live.

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