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@jnrbutterfly

Hello everyone. I am taking a step of faith by posting on this feed. I hope that it is still active and that someone can help me to understand what is happening or possibly help point me in a direction that makes sense.

I went to the doctor in August of this year because I had been so fatigued that I often thought I was going to faint. I have never ever in my life felt so tired. At times, breathing felt like it too all of my energy... as crazy as that sounds. My doctor ordered a bunch of tests and one of them was for EBV. The results came back confusing to me...
My doc told me that I had a recent infection of EBV, but he assured me that I didn’t have mono nor was I contagious.
Based on what I’m seeing... it looks like both antibodies are elevated. Which looks like both a past and a recent infection. Regardless, it has been 5 months and I still feel terrible.

Here are my lab results:

EBNA >600.00 positive
EBV VCA IgG >750 positive
EBV VCA IgM 58.8 positive

In all the threads and forums I’ve seen... I haven’t seen anyone have all three of these test positive. What does that mean? Is this a reactivated EBV or a new infection? Thanks!

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Replies to "Hello everyone. I am taking a step of faith by posting on this feed. I hope..."

Hi @jnrbutterfly . I too have had a positive IgM. My VCA IgG, EBNA, and early antigen were all above what the lab could detect. It looks like you either have a reactivation or this is your initial infection. If you are an adult, I'm guessing it's a reactivation. I got my initial infection at age 20 and now in a reactivation in my forties. Over 90% of the population has EBV sleeping in their body. It is a herpes virus (Herpes-4 to be exact) so like other herpes viruses it can awaken. Stress, whether physical, mental, emotional, can trigger it. Once I was fed up with it and the fact that my doctors were not taking my symptoms seriously, I began to do research on my own. I became a part of some EBV Facebook groups to see what was/wasn't working for others in my situation. Then researched some of the things that popped out. Some of the things that have helped others are nutrition (cut out processed sugars, gluten, dairy, eggs...), herbs, antiviral meds, changing lifestyle (decreasing stress as much as possible), and other supplements to support deficiencies (like iron and zinc). Is there anything that you have tried over the past 5 months. There are some resources that may be helpful for you. http://www.ebvhelp.com is run by Kasia Kines, PhD who just wrote "The Epstein-Barr Virus Solution." Rodger Murphree, DC has treated thousands of people with chronic fatigue syndrome. He also has a book called "Treating and Beating Fibromyalgia and Chronic Fatigue Syndrome." Jacob Teitelbaum, MD is a great resource as well. His website is http://www.vitality101.com. It takes patience and persistance!!!

@jnrbutterfly1 @jnrbutterfly did you get any answers or find a doctor that actually specializes in this besides Cohen at NIH??